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Content type: Advocacy
Our submission made the following recommendations to the Committee regarding the Kenya:Review and amend the proposed digital identity system, the Maisha Numba, to ensure it aligns with Kenya’s national and international human rights obligations in its design and implementation, and adopts legal, policy and technical safeguards to prevent exclusion and marginalisation.Ensure that measures taken to develop digital public infrastructures abide by Kenya’s national and international human rights…
Content type: Long Read
Table of contentsIntroductionWeighing the (potential) benefits with the risksPrivacy rights and the right to healthThe right to healthPrivacy, data-protection and health dataThe right to health in the digital contextWhy the drive for digitalImproved access to healthcarePatient empowerment and remote monitoringBut these same digital solutions carry magnified risks…More (and more connected) dataData leaks and breachesData sharing without informed consentProfiling and manipulationTools are not…
Content type: Long Read
IntroductionData about our health reveals some of the most sensitive, intimate - and potentially embarrassing - information about who we are. Confidentiality is, and has always been, at the very heart of medical ethics. People need to be able to trust their doctors, nurses and other healthcare providers so that they are not afraid to tell them something important about their health for fear of shame, judgement or social exclusion.It’s no surprise then that data protection regimes around…
Content type: Advocacy
Our submission focussed on the evolving impacts of (i) automated decision-making, (ii) the digitisation of social protection programmes, (iii) sensitive data-processing and (iv) assistive technologies in the experiences and rights of people with disabilities.We called on the OHCHR to:Examine the impact that growing digitisation and the use of new and emerging technologies across sectors has upon the rights of persons with disabilities;Urge states to ensure that the deployment of digital…
Content type: Long Read
For over 20 years with the start of the first use of ICTs in the 1990s, we have seen a digital revolution in the health sector. The Covid-19 pandemic significantly accelerated the digitalisation of the health sector, and it illustrates how fast this uptake can be and what opportunities can emerge; but also, importantly, the risks that it involves.
As we've said many times before, whilst technologies can be part of the solution to tackle some socio-economic and political challenges facing our…
Content type: Advocacy
On 6 August 2021, the World Health Organisation (WHO) published its technical specifications and implementation guidance for “Digital Documentation of COVID-19 Certificates: Vaccination Status” (DDCC:VS) following months of consultations. As governments around the world are deploying their own Covid-19 certificates, guidance from the global health agency was expected to set a global approach, and one that prioritises public health. As such, we would expect the WHO to identify what these…
Content type: News & Analysis
Last month, the World Health Organization published its guidance on Ethics and Governance of Artificial Intelligence for Health. Privacy International was one of the organisations that was tasked with reviewing the report. We want to start by acknowledging that this report is a very thorough one that does not shy away from acknowledging the risks and limitations of the use of AI in healthcare. As it is often the case with guidance notes of this kind, its effectiveness will depend on the…
Content type: Long Read
As we see Covid-19 vaccination programmes beginning around the world, for the first time since the start of the pandemic there seems to be a light at the end of the tunnel as the fruition of truly unrivalled global scientific efforts has given us hope of saving lives, reopening our societies, and going back to “normal”.
This great moment of hope must not be seen opportunistically as yet another data grab. The deployment of vaccines, and in particular any “immunity passport” or certificate…
Content type: Explainer
Definition
An immunity passport (also known as a 'risk-free certificate' or 'immunity certificate') is a credential given to a person who is assumed to be immune from COVID-19 and so protected against re-infection. This 'passport' would give them rights and privileges that other members of the community do not have such as to work or travel.
For Covid-19 this requires a process through which people are reliably tested for immunity and there is a secure process of issuing a document or other…
Content type: News & Analysis
This week International Health Day was marked amidst a global pandemic which has impacted every region in the world. And it gives us a chance to reflect on how tech companies, governments, and international agencies are responding to Covid-19 through the use of data and tech.
All of them have been announcing measures to help contain or respond to the spread of the virus; but too many allow for unprecedented levels of data exploitation with unclear benefits, and raising so many red flags…
Content type: Long Read
This piece was written by Aayush Rathi and Ambika Tandon, who are policy officers at the Centre for Internet and Society (CIS) in India. The piece was originally published on the website Economic Policy Weekly India here.
In order to bring out certain conceptual and procedural problems with health monitoring in the Indian context, this article posits health monitoring as surveillance and not merely as a “data problem.” Casting a critical feminist lens, the historicity of surveillance practices…
Content type: Long Read
Following a series of FOI requests from Privacy International and other organisations, the Department of Health and Social Care has now released its contract with Amazon, regarding the use of NHS content by Alexa, Amazon’s virtual assistant. The content of the contract is to a big extent redacted, and we contest the Department of Health’s take on the notion of public interest.
Remember when in July this year the UK government announced a partnership with Amazon so that people would now…
Content type: Press release
PI, Genewatch and the Council for Responsible Genetics launch the Forensic Genetic Policy Initiative
Today, 60 countries worldwide operate national DNA databases, and at least 34 more are considering putting them in place. The use of DNA evidence in criminal investigations can bring great benefits to society, helping to solve crimes, convict the guilty and exonerate the innocent. However, the mass storage of DNA samples and computerized profiles in databases raises important human rights concerns. Your DNA profile can be used to track you or your relatives. Your DNA sample has the…