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Content type: Impact Case Study
What happenedStrong and effective data protection law is a necessary safeguard against industry and governments' quest to exploit our data. A once-in-a-generation moment arose to reform the global standard on data protection law when the European Union decided to create a new legal regime. PI had to fight to ensure it wasn't a moment where governments and industry would collude to reduce protections.In January 2012, the European Commission published a proposal to comprehensively reform the…
Content type: News & Analysis
We very much welcome today's announcement by Health Secretary Jeremy Hunt that people will be allowed to opt out of having their medical records shared in the NHS England centralised information bank.
The move is an important one for data privacy and patient choice, and has been a key objective of Privacy International in our collaboration with the new medConfidential (which launched yesterday). A month ago, NHS England (and the Director of…
Content type: Press release
PI, Genewatch and the Council for Responsible Genetics launch the Forensic Genetic Policy Initiative
Today, 60 countries worldwide operate national DNA databases, and at least 34 more are considering putting them in place. The use of DNA evidence in criminal investigations can bring great benefits to society, helping to solve crimes, convict the guilty and exonerate the innocent. However, the mass storage of DNA samples and computerized profiles in databases raises important human rights concerns. Your DNA profile can be used to track you or your relatives. Your DNA sample has the…