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Content type: Long Read
IntroductionHarnessing new digital technology to improve people’s health is now commonplace across the world. Countries and international organisations alike are devising digital health strategies and looking to emerging technology to help solve tricky problems within healthcare. At the same time, more and more start-ups and established tech companies are bringing out new, and at times innovative, digital tools aimed at health and wellbeing.
Content type: Examples
US data analytics firm Palantir, known for its numerous contracts with intelligence agencies, military forces, or law enforcement and immigration authorities, has been awarded a £330m contract to run a new mass database for the UK's health service (NHS). The deal comes four years after Palantir was awarded a £1 contract during the Covid-19 pandemic to build an analytics platform for the NHS. People and organisations across the political spectrum have voiced significant privacy and data…
Content type: Examples
Sir John Sawers, the head of MI6 between 2009 and 2014, set up a meeting between Palantir CEO Alex Karp and the Cabinet Office permanent secretary, John Manzoni, in 2019; a year later the US-based company was awarded a £27 million contract to process border and customs data without competitive tender. Palantir's strategy appears to be to offer £1 contracts to provide services to gain a footing, and then raise prices once established. It has also hired former public servants and NHS executives.…
Content type: Video
Quick corrections!
GDPR compensation is in theory possible through court action
GDPR Article 80(2) not Section 20 something as I stated!
Links
Cory's website
Chokepoint Capitalism coauthored with Rebecca Giblin
Giphy and Meta
Chokepoint Capitalism: the audiobook
How to leave dying social media platforms (without losing your friends)
Cory on Mastodon: https://mamot.fr/@doctorow and https://mamot.fr/@pluralistic
PI on Mastodon
Crad Kilodney documentary
Algorithms…
Content type: Advocacy
Now is the time to strengthen not weaken data protection to keep us all safe. Here we outline some edited areas of our consultation response that highlight the impact of the proposed loss or weakening of many important protections:
The proposal to broadening consent and further processing for research purposes:
PI urges caution with regard to provisions that seek to potentially undermine the strict conditions around obtaining consent. The GDPR placed stronger conditions on obtaining consent…
Content type: Long Read
This piece is a part of a collection of research that demonstrates how data-intensive systems that are built to deliver reproductive and maternal healthcare are not adequately prioritising equality and privacy.
Digital health apps of all kinds are being used by people to better understand their bodies, their fertility, and to access health information. But there are concerns that the information people both knowingly and unknowing provide to the app, which can be very personal health…
Content type: Long Read
In a roundtable available on YouTube, co-hosted with Garden Court Chambers, Privacy International brought together immigration law practitioners to discuss how they’ve used privacy and data protection law to seek information or redress for their clients.
Index:
1. UK Border 2025
2. Super-complaint and judicial review challenge to data sharing
3. Mobile phone seizure and extraction
4. Freedom of Information Act requests
The dystopian future: UK Border 2025
To set the scene on how the…
Content type: Long Read
For over 20 years with the start of the first use of ICTs in the 1990s, we have seen a digital revolution in the health sector. The Covid-19 pandemic significantly accelerated the digitalisation of the health sector, and it illustrates how fast this uptake can be and what opportunities can emerge; but also, importantly, the risks that it involves.
As we've said many times before, whilst technologies can be part of the solution to tackle some socio-economic and political challenges facing our…
Content type: Long Read
Image source
This piece is a part of a collection of research that demonstrates how data-intensive systems that are built to deliver reproductive and maternal healthcare are not adequately prioritising equality and privacy.
Telemedicine describes the vast range of applications and technologies used to provide and manage healthcare remotely.
Telemedicine as its most basic refers to the transmission of data from a patient to a healthcare professional through a range of electronic…
Content type: News & Analysis
Back in 2019, UK Health Secretary Matt Hancock announced a partnership between the NHS and Amazon Alexa. The goal of the partnership was for Alexa to be able to use the content of the NHS website when people asked health-related questions.
At the time, we expressed a number of concerns regarding this agreement: Amazon did not appear to be an actor that should be trusted with our health information, and seeing the Health Secretary publicly praising this new agreement appeared to give…
Content type: Explainer
You can access PI’s response to the consultation here.
This explainer is based on PI’s analysis and understanding of:
The Consultation text
The Draft Code of Data Matching Practice
The Cabinet Office’s data specifications for the public and private sector
The Cabinet Office’s 2015 case-studies both for the public and private sector
The Data Protection Impact Assessment for the current iteration of the National Fraud…
Content type: Examples
The UK Ministry of Housing, Communities, and Local Government hired the AI firm Faculty, which had previously been contracted by prime ministerial special advisor Dominic Cummings to work for the Vote Leave campaign and which lists two current and former Conservative ministers among its shareholders, to monitor and analyse social media “to understand public perception and emerging issues of concern to HMG arising from the COVID-19 crisis”. Faculty was paid £400,000 for the work. The contract…
Content type: News & Analysis
Earlier this week, the UK Government announced that no immigration status checks will be carried out for migrants trying to register with their GP and get vaccinated. But temporary offers of safety are not enough to undo the decades of harm caused by policies that have embedded immigration controls into public services.
Years of charging migrants for healthcare and sharing patient data with the Home Office has eroded trust between migrant communities and the NHS. As a result, they might not…
Content type: Examples
Article extract:
"The lobbying firm founded by election guru Lynton Crosby is reported to have advised private healthcare providers on how to exploit failings in the NHS..."
"...Crosby Textor advised an umbrella group of private healthcare providers on how to exploit perceived “failings”, according to a leaked document obtained by the Guardian.
The newspaper published extracts from a slideshow presentation produced for the H5 Private Healthcare Alliance, which stated that people believe the…
Content type: Examples
In October UK health officials discovered that limitations on the number of rows on an older version of Microsoft’s spreadsheet software Excel led the system to miss 16,000 positive coronavirus tests and fail to alert an estimated 50,000 people who had been in close contact with them that they should quarantine. About half of the missed cases are thought to have been in northwest England, where infection rates were already rising. The government’s science advisors recommended revamping the…
Content type: Examples
[UK] Refugees and asylum seekers are wrongly sent NHS charges for 'tens of thousands' for healthcare
NHS hospitals are wrongly sending bills for as much as “tens of thousands of pounds” to asylum seekers and refugees in Bristol - and refusing some care upfront, it is claimed.
Asylum seekers and refugees are entitled to free healthcare in the UK.
But there are numerous anecdotes of vulnerable migrants receiving enormous bills for the treatment they have received and being refused hospital care not deemed “urgent or necessary”, according to support agencies in Bristol.
Some charging letters…
Content type: Report
One name in tech has become embroiled in controversy: Palantir, a big-data analytics outfit.
Palantir weren’t that well known in the UK until the Covid-19 pandemic, when they were thrust into the national spotlight after the UK Government granted them access to reportedly unprecedented quantities of NHS patient data for processing and analysis in response to the novel Coronavirus.
Palantir isn’t just working with the NHS, yet despite their extensive work with the government could potentially…
Content type: Examples
Manchester-based VST Enterprises is developing a rapid COVID-19 testing kit intended to help restart stadium sporting events. The results of tests, which fans will take the day before the event they wish to attend and provide results within ten minutes, will be stored in VSTE’s V-Health Passport, a secure mobile phone app into which users enter their name, address, date of birth, phone number, and doctor information, plus a scanned official identity document against which the smartphone can…
Content type: Examples
Manchester-based VST Enterprises is developing a rapid COVID-19 testing kit intended to help restart stadium sporting events. The results of tests, which fans will take the day before the event they wish to attend and provide results within ten minutes, will be stored in VSTE’s V-Health Passport, a secure mobile phone app into which users enter their name, address, date of birth, phone number, and doctor information, plus a scanned official identity document against which the smartphone can…
Content type: Examples
Testing for All is helping small employers and individuals access antibody tests by making them available at £42 each out of fear that “testing inequality” could fuel greater financial inequality, as private schools and big businesses have introduced testing to allow pupils and employees to return to school and work but state schools and small businesses are left to rely on the state. Among the employers adopting antibody testing for staff are Credit Suisse, Ocado, and Premier League football,…
Content type: Examples
Hours before OpenDemocracy filed suit to compel the UK government to release all the contracts governing its deals with a list of technology firms including Amazon, Microsoft, Google, Palantir, and Faculty, the UK government released the contracts. Faculty is being paid more than £1 million to provide AI services for the NHS, and the companies involved in the NHS data store project, including Faculty and Palantir, were originally granted intellectual property rights and were allowed to train…
Content type: Examples
UK police reported to be planning separate contact tracing system
Police forces in the UK are planning their own contact tracing system because they are concerned that giving details to the national contact tracing system would compromise undercover operations and working methods. Options under discussion include having police forces take over all contact tracing for police officers and staff or seconding staff from the NHS test and trace system to police forces. Health officials, however, say…
Content type: Examples
In the three months from March to May 2020 the UK government awarded at least £1.7 billion in contracts to private companies, most of them without a competitive tender process under emergency procurement measures put in place in March. A quarter of the 400 contracts that government departments have published have gone to companies that have not previously carried out government work, and at least seven were worth more than £100 million. The largest that has been published was a £234 million…
Content type: Examples
The app-based track-and-trace system that was supposed to be in place in the UK by June 1 will not be working at full speed until September or October, and the chief executive of Serco, one of the main companies contracted to deliver it, doubted the system would evolve smoothly. Scientists have said that lockdown should not be eased until the track-and-trace system is well-established. Serco is responsible for recruiting 10,000 of the 25,000 contact tracers, and is being paid an initial fee of…
Content type: Examples
The UK government spent two months touting its contact tracing app as the prospective basis for returning to something close to normality. As the June 1 target date approached, however, the government increasingly downplayed its importance. In the meantime, Apple and Google’s API were adopted by several others countries that had intended, like the UK, to build their own, and a trial on the Isle of Wight failed to produce the download numbers or success rate the commissioning agency, NHSx, had…
Content type: Examples
After the CEO of NHSx told the the UK parliament that data harvested by the NHSx contact tracing app would be retained for future research, the UK Ministry of Defence said it would turn the data over to its Jhub to sanitise the data and remove all personally identifying information before passing it on to NHSx. The app was due for improvements to its security after the code was released on Github and the app was trialled on the Isle of Wight.
https://www.theregister.com/2020/05/20/…
Content type: News & Analysis
In September 2019, PI published the report Your Mental Health for Sale. Our investigation looked into popular mental health websites and their data sharing practices.
Our findings suggest that, at the time of the research, most websites we looked at were using third party tracking for advertising purposes, sometimes relying on programmatic advertising technologies such as Real Time Bidding (RTB), sharing personal data with potentially thousands of actors. Some websites were also found sharing…
Content type: Long Read
What Do We Know?
Palantir & the NHS
What You Don’t Know About Palantir in the UK
Steps We’re Taking
The Way Forward
This article was written by No Tech For Tyrants - an organisation that works on severing links between higher education, violent tech & hostile immigration environments.
Content type: Examples
The UK's Project OASIS collects data from third-party app providers that are collecting COVID-19 symptoms and demographic data to help the NHS respond to the COVID-19 pandemic. The Ministry of Defence Strategic Command's technology innovation hub, JHub, has been brought in to provide assistance and coordination, and to facilitate the secure transfer of relevant symptom and epidemiology data from the third-party apps to NHSx. Part of JHub's role is to remove any identifying information, erase…