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Content type: News & Analysis
Back in 2019, UK Health Secretary Matt Hancock announced a partnership between the NHS and Amazon Alexa. The goal of the partnership was for Alexa to be able to use the content of the NHS website when people asked health-related questions.
At the time, we expressed a number of concerns regarding this agreement: Amazon did not appear to be an actor that should be trusted with our health information, and seeing the Health Secretary publicly praising this new agreement appeared to give…
Content type: News & Analysis
Earlier this week, the UK Government announced that no immigration status checks will be carried out for migrants trying to register with their GP and get vaccinated. But temporary offers of safety are not enough to undo the decades of harm caused by policies that have embedded immigration controls into public services.
Years of charging migrants for healthcare and sharing patient data with the Home Office has eroded trust between migrant communities and the NHS. As a result, they might not…
Content type: Report
One name in tech has become embroiled in controversy: Palantir, a big-data analytics outfit.
Palantir weren’t that well known in the UK until the Covid-19 pandemic, when they were thrust into the national spotlight after the UK Government granted them access to reportedly unprecedented quantities of NHS patient data for processing and analysis in response to the novel Coronavirus.
Palantir isn’t just working with the NHS, yet despite their extensive work with the government could potentially…
Content type: Long Read
What Do We Know?
Palantir & the NHS
What You Don’t Know About Palantir in the UK
Steps We’re Taking
The Way Forward
This article was written by No Tech For Tyrants - an organisation that works on severing links between higher education, violent tech & hostile immigration environments.
Content type: News & Analysis
As countries around the world develop contact tracing apps to contain the spread of Coronavirus, they keep facing a problem: for them to be effective a certain percentage of the population has to download them. Something like 60% is the threshold for the app to be effective. So far only Iceland has gotten close with 38% of their country downloading it.
The UK is currently trialling an app, which is designed to notify people if they've been close to someone with symptoms of covid-19 for 15…
Content type: News & Analysis
This week, we read that a former Apple contractor who blew the whistle on the company’s programme to listen to users’ Siri recordings has decided to go public, in protest at the lack of action taken as a result of the July 2019 disclosures. The news adds to a series of revelations that have been reported over the past months.
While the issue raises serious questions regarding the compatibility of such practices with data protection laws, at the same time, it highlights a wider problem that…
Content type: Long Read
This week saw the release of a coronavirus tracking app within the United Kingdom, initially to be trialled in the Isle of Wight. Privacy International has been following this closely, along with other ‘track and trace’ apps like those seen in over 30 other countries.
The UK’s app is no different. It is a small part of a public health response to this pandemic. As with all the other apps, it is vital that it be integrated with a comprehensive healthcare response, prioritise people, and…
Content type: Long Read
On 12 April 2020, citing confidential documents, the Guardian reported Palantir would be involved in a Covid-19 data project which "includes large volumes of data pertaining to individuals, including protected health information, Covid-19 test results, the contents of people’s calls to the NHS health advice line 111 and clinical information about those in intensive care".
It cited a Whitehall source "alarmed at the “unprecedented” amounts of confidential health information being swept up in the…
Content type: Long Read
Today, migrant communities in the UK already face multiple well-documented obstacles in accessing healthcare, not least because of charges to access the National Health Service (NHS), as it is the case for non-EU migrants, and legitimate fears of data-sharing between the NHS and the Home Office.
In the current pandemic, in addition to these concerns, asylum-seekers face an impossible choice: risk exposure to coronavirus, or be unable to apply for asylum.
Individuals seeking…
Content type: Press release
Photo by Ashkan Forouzani on Unsplash
Today Privacy International, Big Brother Watch, medConfidential, Foxglove, and Open Rights Group have sent Palantir 10 questions about their work with the UK’s National Health Service (NHS) during the Covid-19 public health crisis and have requested for the contract to be disclosed.
On its website Palantir says that the company has a “culture of open and critical discussion around the implications of [their] technology” but the company have so far…
Content type: Long Read
This research is the result of a collaboration between Grace Tillyard, a doctoral researcher in the Media, Communications and Cultural Studies department at Goldsmiths College, London, and Privacy International.
Social Protection Systems in the Digital Age
In the digital age, governments across the world are building technologically integrated programmes to allow citizens to access welfare payments. While smart and digital technologies hold the potential to streamline administrative…
Content type: Long Read
A new study by Privacy International reveals how popular websites about depression in France, Germany and the UK share user data with advertisers, data brokers and large tech companies, while some depression test websites leak answers and test results with third parties. The findings raise serious concerns about compliance with European data protection and privacy laws.
This article is part of a research led by Privacy International on mental health websites and tracking. Read our…
Content type: News & Analysis
This article is part of a research led by Privacy International on mental health websites and tracking. Read our full report.
According to the World Health Organisation (WHO), 25 percent of the European population suffers from depression or anxiety each year, yet about 50% of major depressions remain untreated. This means that everyday thousands of people are looking for information about depression online. They take tests to find out how serious their symptoms are, they try to access…
Content type: News & Analysis
Today, the British Health Secretary Matt Hancock announced a partnership between the NHS and Amazon to use the NHS’s website content as the source for the answer given to medical question, such as “Alexa, how do I treat a migraine?”
While we welcome Amazon’s use of a trusted source of information for medical queries, we are however extremely concerned about the nature and the implications of this partnership. Amazon is a company with a worrying track record when it comes to the way they…
Content type: Press release
For further information please contact PI Legal Officer Millie Graham Wood: [email protected]
For media enquiries please contact [email protected]
Documents obtained by Privacy International reveal the existence of a secret oversight function given to the Intelligence Services Commissioner (ISC), in operation since at least 2014. The details of this function, referred to as the ‘third direction’, remain redacted and only came to light following…
Content type: Press release
Previously confidential documents published today reveal the staggering extent of UK Government surveillance that has been kept secret from the public and Parliament for the last 15 years. Revealed in a case brought by Privacy International about the use of so-called 'Bulk Personal Datasets' and a law dating back to 1984, the extracts show that the UK Government's intelligence services, GCHQ, MI5, and MI6, routinely requisition personal data from potentially thousands of public and…
Content type: News & Analysis
We very much welcome today's announcement by Health Secretary Jeremy Hunt that people will be allowed to opt out of having their medical records shared in the NHS England centralised information bank.
The move is an important one for data privacy and patient choice, and has been a key objective of Privacy International in our collaboration with the new medConfidential (which launched yesterday). A month ago, NHS England (and the Director of…
Content type: News & Analysis
Privacy International welcomes the news that the UK NHS Data Spine is being replaced. We have fundamental privacy concerns about the existing infrastructure, and the proposed changes have the potential to enable the necessary privacy protections to be implemented in a meaningful way.
Core elements of the NHS Spine, the technological infrastructure underpinning the Service that cost the Government over £12 billion pounds, will be have to be replaced after numerous failures. The…
Content type: News & Analysis
A full analysis of the UK Information Commissioner's "Anonymisation code of practice: managing data protection risk" will take time and working knowledge of how the code is used in practice.
At the launch, the ICO signalled that while they believed the code was now up to scratch, they were open to additions and clarifications given that it is the first document of its kind in the world. We applaud them for this; the code is likely to be copied internationally, so it is particularly…
Content type: News & Analysis
Large institutions tend to focus internally, with minimal regard to the external environment. Open Databecoming institutionalised is not different, and as a leading edge country in opening data, the UK is making the predictable mistakes first:
The UK’s Department for Education (DfE) is currently considering opening data from the National Pupil Database. At a preparation event for this initiative, at which some data was released for use in an ‘appathon’, one participant believed he…
Content type: News & Analysis
On July 3rd 2002, the UK Government published a consultation paper on a national identity card. Privacy International has investigated such proposals across the world for more than a decade. Here, we answer all the questions the government has failed to answer.
What sort of ID card does the government have in mind?
What is the difference between an "entitlement" card, and an identity card?
Will an identity card will help eliminate benefit fraud?
Will an identity card help prevent terrorism?
Is…