Search
Content type: Long Read
IntroductionHarnessing new digital technology to improve people’s health is now commonplace across the world. Countries and international organisations alike are devising digital health strategies and looking to emerging technology to help solve tricky problems within healthcare. At the same time, more and more start-ups and established tech companies are bringing out new, and at times innovative, digital tools aimed at health and wellbeing.
Content type: Examples
In early August, when the UK government announced it was purchasing 90-minute saliva-based COVID-19 tests called LamPORE and 5,000 lab-free machines to process them, supplied by DNANudge, clinical researchers were dismayed to find that there is no publicly available data about the accuracy or performance of these tests. While the tests could be a game-changer by offering rapid, on-the-spot testing with less discomfort for patients, no scientific research was offered to validate the tests, not…
Content type: Case Study
In the Xingjiang region of Western China, surveillance is being used to facilitate the government’s persecution of 8.6million Uighur Muslims.
Nurjamal Atawula, a Uighur woman, described how, in early 2016, police began regularly searching her home and calling her husband into the police station, as a result of his WeChat activity.
WeChat is a Chinese multi-purpose messaging, social media and mobile payment app. As of 2013, it was being used by around 1million Uighurs, but in 2014 WeChat was…
Content type: News & Analysis
Photo: The European Union
On 2 September 2019, Privacy International, together with 60 other organisations, signed an open letter to the European Parliament to express our deep concern about upcoming EU policy proposals which undermine the EU’s founding values of human rights, peace and disarmament.
Since 2017, the EU has diverted funds towards security research and security capacity-building in countries around the world. The proposal for the EU's next budget (2021-2027) will…
Content type: Examples
In February 2019 BuzzFeed News reported that one of the largest home DNA testing companies, FamilyTreeDNA, had formed an agreement with the FBI to grant the agency access to its database of more than 1 million genetic profiles, most of which were supplied by consumers with no thought that they would be accessible to law enforcement. FamilyTreeDNA has also agreed to test DNA evidence and identify remains of victims of violent crimes for the FBI in its own laboratory. FamilyTreeDNA said…
Content type: Examples
In October 2018, British home secretary Sajid Javid apologised to more than 400 migrants, who included Gurkha soldiers and Afghans who had worked for the British armed forces, who were forced to provide DNA samples when applying to live and work in the UK. DNA samples are sometimes provided by applicants to prove their relationship to someone already in the UK, but are not supposed to be mandatory. An internal review indicated that more people than the initially estimated 449 had received DNA…
Content type: Examples
In December 2017, it was revealed that the large telco Bharti Airtel made use of Aadhaar-linked eKYC (electronic Know Your Customer) to open bank accounts for their customers without their knowledge or consent. eKYC is a way of using data in the UIDAI database as part of the verification process, which Airtel made use of for the issuing of SIM cards, and also secretly opened bank accounts with their Airtel Payments Bank. More than 2 million accounts could have been opened, receiving more than…
Content type: Examples
On July 1, 2015 Kuwait's National Assembly passed a new counter-terrorism law that included the requirement that all 1.3 million Kuwaiti citizens and 2.9 million foreign residents provide DNA samples, which will be stored in a database maintained and operated by the Interior Ministry. The law, which was a response to the June 2015 suicide bombing of the Imam Sadiq Mosque, which killed 27 people and wounded 227. The law provides for a penalty of up to one year in prison and fines of up to $33,…
Content type: Examples
In 2015 Hong Kong's Face of Litter campaign used DNA samples taken from street litter and collected from volunteers to create facial images that were then posted on billboards across the city. The campaign, conceived by PR firm Ogilvy & Mather and organised by online magazine Ecozine and the Nature Conservancy, was intended to give a face to anonymous Hong Kong litterbugs and raise awareness of the extent of littering in the city and encourage people to…
Content type: Press release
PI, Genewatch and the Council for Responsible Genetics launch the Forensic Genetic Policy Initiative
Today, 60 countries worldwide operate national DNA databases, and at least 34 more are considering putting them in place. The use of DNA evidence in criminal investigations can bring great benefits to society, helping to solve crimes, convict the guilty and exonerate the innocent. However, the mass storage of DNA samples and computerized profiles in databases raises important human rights concerns. Your DNA profile can be used to track you or your relatives. Your DNA sample has the…
Content type: News & Analysis
Two months ago, the UK Borders Agency began fingerprinting foreign children over six years old, from outside the European Economic Area and resident in Britain. At the time Jacqui Smith was congratulated for her tough line on issuing identity cards to foreign residents and no one, not even parliament, noticed that the biometric requirements applied to children of six. And parliament didn't know because it was never asked to approve the policy.
Nowhere in the world are you more powerless than…
Content type: News & Analysis
The Supreme Court of Canada has upheld the legality of the DNA database, including the retroactive collection of profiles. This decision supports the DNA Identification Act of 1998 and sees the taking of DNA from those who are convicted of serious offences not so much as a search but more as an act that enables identification.
In the case R v Rodgers (2006), decided 4-3, the Court was asked to consider, amongst numerous other issues:
Whether collection of DNA samples for data bank…
Content type: News & Analysis
The Criminal Justice Act 2003 further widens the circumstances in which a non-intimate sample may be taken from an individual. The Act merely requires that in order to take a non-intimate sample without consent, a person is arrested for a recordable offence - a significant advancement on the requirement that the individual was charged with a recordable offence and one that will encompass countless more individuals.
Section 10 of the CJA 2003 alters the taking of non-intimate samples, but in a…
Content type: News & Analysis
A campaign to eliminate the DNA profiles of 24,000 innocent juveniles from the database has been instigated by a Conservative Member of Parliament after a lengthy battle to remove the record of a concerned constituent’s son who was arrested as a result of misidentification. The National DNA Database currently holds the records of 750,000 juveniles – some of whom have been convicted of offences but many of whom were only charged, cautioned, questioned or were mere witnesses to incidents.
The…
Content type: News & Analysis
The UK currently maintains the largest DNA Database in the world and is encouraging other governments to implement similar systems in their respective countries. Using international organisations such as Interpol, participant governments will be able to share and exchange the DNA profiles of their citizens subject to vague legislative provisions, such as 'the interests of crime detection and prevention'.
Background
The successful prosecution of a serial sex offender in 2004 led to…
Content type: News & Analysis
The most significant amendment of the Criminal Justice and Police Act 2001 (hereafter 'CJPA') is the amendment to the circumstances in which samples may be retained. The Act allows for retention of samples even where charges are dropped or the individual is cleared of the offence. It also allows for such samples to be used for (future) purposes related to the detection and prevention of crime, both in the UK and abroad.
In relation to the taking of samples, the CJPA 2001 amends PACE by…
Content type: News & Analysis
Although DNA matching was first used to catch an offender in 1987, the Police and Criminal Evidence Act 1984 is instrumental in defining police treatment of suspects in the early stages of an investigation. Despite the fact that the Act has been amended on numerous occasions since its inception, analysis of the original legislation provides the starting point to map out the development and expansion of the circumstances in which samples containing DNA can be taken from individuals.
This early…
Content type: News & Analysis
The French government is considering the implementation of a new project, Project INES (Identite National Electronique Securisee), which will involve a system very similar to the one proposed in the UK. The French are even using similar statements, such as 'international obligations', 'terrorism', and concern regarding 'identity theft'. The Forum for Civil Liberties on the Internet ("Le Forum des droits sur l'internet) was asked by then Minister of the Interior Dominique de Villepin to conduct…