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Content type: Advocacy
In an increasingly digitised world, automation, artificial intelligence and sensitive data processing present new and rapidly shifting challenges which underscore the urgent need for states to ensure that the rights of persons with disabilities are explicitly addressed and centred when it comes to the use of data and technology. Digital technologies can offer important opportunities for accessibility and the realisation of human rights of persons with disabilities, but can also present…
Content type: Long Read
Table of contentsIntroductionWeighing the (potential) benefits with the risksPrivacy rights and the right to healthThe right to healthPrivacy, data-protection and health dataThe right to health in the digital contextWhy the drive for digitalImproved access to healthcarePatient empowerment and remote monitoringBut these same digital solutions carry magnified risks…More (and more connected) dataData leaks and breachesData sharing without informed consentProfiling and manipulationTools are not…
Content type: Advocacy
In PI’s view the Revised Draft is a significant step back to the already weakened previous draft. Among the many concerns that we highlight in this analysis, we are particularly dismayed by the deletion of a principle on privacy, data protection and confidentiality in Article 3. In all previous drafts, the inclusion of such provision reflected the importance that data protection and privacy plays in any effective, modern public health policies. Failing to keep a specific principle on privacy…
Content type: Advocacy
Dejusticia, Fundación Karisma, and Privacy International submitted a joint stakeholder report on Colombia to the 44th session of the Universal Periodic Review at the UN Human Rights Council.Our submission raised concerns regarding the protection of the rights to freedom of expression and opinion, to privacy, and to personal data protection; the shutdown of civil society spaces; protection of the right to protest; and protection of the rights of the Venezuelan migrant and refugee population.…
Content type: Advocacy
Our submission focussed on the evolving impacts of (i) automated decision-making, (ii) the digitisation of social protection programmes, (iii) sensitive data-processing and (iv) assistive technologies in the experiences and rights of people with disabilities.We called on the OHCHR to:Examine the impact that growing digitisation and the use of new and emerging technologies across sectors has upon the rights of persons with disabilities;Urge states to ensure that the deployment of digital…
Content type: Advocacy
Privacy International contributed to the UNSR's report by submitting information on the work we have done as well as our Network of partners as we’ve monitored and responded to developments associated with the use of data and technology in the health care sector by governments and companies.
Content type: Advocacy
Privacy International (PI) notes the Bureau’s text of the WHO convention, agreement or other international instrument on pandemic prevention, preparedness and response (“WHO CA+”).
PI has sought to closely follow and engage with the discussions leading up to the draft treaty, despite the significant limitations to civil society participation in the process. In February 2023, we intervened during the briefing organised by the INB bureau and published our comments on the zero draft of the WHO CA…
Content type: Advocacy
Privacy International (PI) welcomes the zero draft of the WHO convention, agreement or other international instrument on pandemic prevention, preparedness and response (“WHO CA+”). PI has sought to closely follow and engage with the discussions leading up to the draft treaty, despite the significant limitations to civil society participation in the process.
PI believes that the zero draft offers a good basis for negotiations. In particular, we welcome the inclusion of a provision on…
Content type: Advocacy
PI welcomes the opportunity to engage once again with the mandate by submitting comments, evidence, and recommendations to the UN Special Rapporteur on the right to health, Ms. Tlaleng Mofokeng. We hope that our input will contribute to the forthcoming report, “Digital innovation, technologies and the right to health”.
Technology has contributed significantly to the planning and delivery of health information, services and care. We have seen the use of data and technology across the healthcare…
Content type: Advocacy
Privacy International (PI) notes the conceptual zero draft of the WHO’s Pandemic prevention, preparedness, and response accord (“WHO CAII”). PI has sought to closely follow and engage with the discussions leading up to the draft CAII, despite the significant limitations to civil society participation in the process. In September 2022 we submitted our observations to the working draft of the WHO CAII. This analysis builds upon those observations.
Broadly, PI welcomes the content of the…
Content type: Advocacy
Privacy International welcomes the opportunity to provide written input on the working draft of the WHO’s Pandemic prevention, preparedness, and response accord (“WHO CAII”) published on 13 July 2022.
This submission is based on our research and assessment of data-reliant and tech-intensive measures deployed by governments and companies in response to Covid-19 and its aftermath, which documented how these measures impacted people’s fundamental rights and freedoms, including the right to…
Content type: Long Read
This piece is a part of a collection of research that demonstrates how data-intensive systems that are built to deliver reproductive and maternal healthcare are not adequately prioritising equality and privacy.
What are they?
Short Message Services (SMS) are being used in mobile health (MHealth) initiatives which aim to deliver crucial information to expecting and new mothers. These initiatives are being implemented in developing countries experiencing a large percentage of maternal and…
Content type: Long Read
For over 20 years with the start of the first use of ICTs in the 1990s, we have seen a digital revolution in the health sector. The Covid-19 pandemic significantly accelerated the digitalisation of the health sector, and it illustrates how fast this uptake can be and what opportunities can emerge; but also, importantly, the risks that it involves.
As we've said many times before, whilst technologies can be part of the solution to tackle some socio-economic and political challenges facing our…
Content type: Long Read
India’s Mother and Child Tracking System (MCTS) is a system that collects vast amounts of data about pregnant people, children, and families. It is an initiative by the Ministry of Health and Family Welfare in India, and was first trialled in 2009. It was then rolled out nation-wide in 2011. Its declared purpose, as stated in the press release accompanying it, was to facilitate “ensuring timely delivery of full spectrum of health care services to pregnant women and children up to 5 years of age…
Content type: Advocacy
On 6 August 2021, the World Health Organisation (WHO) published its technical specifications and implementation guidance for “Digital Documentation of COVID-19 Certificates: Vaccination Status” (DDCC:VS) following months of consultations. As governments around the world are deploying their own Covid-19 certificates, guidance from the global health agency was expected to set a global approach, and one that prioritises public health. As such, we would expect the WHO to identify what these…
Content type: News & Analysis
The Aspen Card - the debit payment card given to asylum seekers that PI has previously exposed as a de facto surveillance tool - will be outsourced to a new company. The contract with Sodexo has come to an end and the company Prepaid Financial Services will be taking over.
Our campaign for transparency in relation to the Aspen Card and how it monitors asylum seekers continues. Not only do we demand clarity from the Home Office [read more here], we believe the new provider, Prepaid Financial…
Content type: News & Analysis
This article was written by Jamila Venturini from Derechos Digitales. The original version (in Spanish) is available here.
While at the international level there is a growing demand to ban the use of surveillance technologies until rigorous human rights standards are achieved, in Latin America we observe a new and silent tendency to acquire and use such systems to control access to social protection, i.e., to policies developed to reduce poverty, social vulnerability and exclusion…
Content type: Long Read
This report is available in English.
La mayoría de los documentos nacionales de identidad y demás documentos emitidos por autoridades estatales incluyen un marcador de género. Estos marcadores suelen recibir el nombre de “marcador de sexo” aunque este término no sea preciso. La presencia de dichos marcadores, especialmente en los certificados de nacimiento, promueve el énfasis de nuestra sociedad en el género como criterio de asignación de identidades, roles y responsabilidades sociales. Al…
Content type: Long Read
As we see Covid-19 vaccination programmes beginning around the world, for the first time since the start of the pandemic there seems to be a light at the end of the tunnel as the fruition of truly unrivalled global scientific efforts has given us hope of saving lives, reopening our societies, and going back to “normal”.
This great moment of hope must not be seen opportunistically as yet another data grab. The deployment of vaccines, and in particular any “immunity passport” or certificate…
Content type: Report
While identity systems pose grave dangers to the right to privacy, based on the particularities of the design and implementation of the ID system, they can also impact upon other fundamental rights and freedoms upheld by other international human rights instruments including the International Covenant on Civil and Political Right and the International Covenant on Economic, Social and Cultural Rights such as the right to be free from unlawful discrimination, the right to liberty, the right to…
Content type: Explainer
At first glance, infrared temperature checks would appear to provide much-needed reassurance for people concerned about their own health, as well as that of loved ones and colleagues, as the lockdown is lifted. More people are beginning to travel, and are re-entering offices, airports, and other contained public and private spaces. Thermal imaging cameras are presented as an effective way to detect if someone has one of the symptoms of the coronavirus - a temperature.
However, there is little…
Content type: Explainer
Definition
An immunity passport (also known as a 'risk-free certificate' or 'immunity certificate') is a credential given to a person who is assumed to be immune from COVID-19 and so protected against re-infection. This 'passport' would give them rights and privileges that other members of the community do not have such as to work or travel.
For Covid-19 this requires a process through which people are reliably tested for immunity and there is a secure process of issuing a document or other…
Content type: Case Study
As working from home is becoming the new normal, employees’ monitoring becomes the new norm.
Companies around the globe are increasingly using software to monitor how long we spend in front of our computer, what websites we visit and what apps we use, when we type, for how long and how fast, how long our mouse stay inactive — any more than 15 seconds away can shift us from ‘active’ to ‘idle’ — and require us to keep our camera and microphone on at all times. These systems pit us against our…
Content type: Report
SUMMARY
In the UK, local authorities* are looking at people’s social media accounts, such as Facebook, as part of their intelligence gathering and investigation tactics in areas such as council tax payments, children’s services, benefits and monitoring protests and demonstrations.
In some cases, local authorities will go so far as to use such information to make accusations of fraud and withhold urgently needed support from families who are living in extreme poverty.
THE PROBLEM
Since 2011…
Content type: Long Read
Coronavirus-related lockdown measures have impacted almost 2.7 billion workers, with some countries seeing unprecedented levels of applications for welfare benefits support.
In response, emergency relief legislation for welfare recipients has been fast-tracked worldwide, from the UK to Brazil. These measures, combined with the growing awareness of Covid-19's differentiated impact along the fault lines of class, race, gender and legal status, rightly seek to address the needs of…
Content type: Advocacy
To the Members of the European Parliament and to the Committee on Budgets of the European Parliament
The EU urgently needs to step up and provide assistance to protect the health and safety of people trapped in camps on the Greek islands - not just to protect their welfare, but to contain the virus itself as a matter of global public health.
However, as we detail in the briefing below, the current European Commission proposal for funds allocation is insufficient to ensure the safety of…
Content type: News & Analysis
This week International Health Day was marked amidst a global pandemic which has impacted every region in the world. And it gives us a chance to reflect on how tech companies, governments, and international agencies are responding to Covid-19 through the use of data and tech.
All of them have been announcing measures to help contain or respond to the spread of the virus; but too many allow for unprecedented levels of data exploitation with unclear benefits, and raising so many red flags…
Content type: Long Read
This piece was written by Aayush Rathi and Ambika Tandon, who are policy officers at the Centre for Internet and Society (CIS) in India. The piece was originally published on the website Economic Policy Weekly India here.
In order to bring out certain conceptual and procedural problems with health monitoring in the Indian context, this article posits health monitoring as surveillance and not merely as a “data problem.” Casting a critical feminist lens, the historicity of surveillance practices…
Content type: Advocacy
TEDIC, InternetLab, Derechos Digitales, la Fundación Karisma, Dejusticia, la Asociación por los Derechos Civiles y Privacy International acogen el llamado de la Relatoría Especial sobre Derechos Económicos, Sociales, Culturales y Ambientales (DESCA) de la Comisión Interamericana de Derechos Humanos (CIDH) de enviar información para la elaboración del Informe Anual sobre DESCA del año 2019, que se presentará ante la Organización de los Estados Americanos (OEA) en 2020.
El objeto de este…
Content type: Advocacy
TEDIC, InternetLab, Derechos Digitales, Fundación Karisma, Dejusticia, Asociación por los Derechos Civiles and Privacy International welcome the call made by the Special Rapporteurship on Economic, Social, Cultural and Environmental Rights (ESCER) of the Inter-American Commission on Human Rights (IACHR) to inform the preparation of the Annual Report of the ESCER for the year 2019, which will be presented to the Organization of American States (OAS) during 2020.
This submission aims to outline…