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Content type: Advocacy
Now is the time to strengthen not weaken data protection to keep us all safe. Here we outline some edited areas of our consultation response that highlight the impact of the proposed loss or weakening of many important protections:
The proposal to broadening consent and further processing for research purposes:
PI urges caution with regard to provisions that seek to potentially undermine the strict conditions around obtaining consent. The GDPR placed stronger conditions on obtaining consent…
Content type: Long Read
This piece is a part of a collection of research that demonstrates how data-intensive systems that are built to deliver reproductive and maternal healthcare are not adequately prioritising equality and privacy.
Digital health apps of all kinds are being used by people to better understand their bodies, their fertility, and to access health information. But there are concerns that the information people both knowingly and unknowing provide to the app, which can be very personal health…
Content type: Long Read
For over 20 years with the start of the first use of ICTs in the 1990s, we have seen a digital revolution in the health sector. The Covid-19 pandemic significantly accelerated the digitalisation of the health sector, and it illustrates how fast this uptake can be and what opportunities can emerge; but also, importantly, the risks that it involves.
As we've said many times before, whilst technologies can be part of the solution to tackle some socio-economic and political challenges facing our…
Content type: Long Read
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This piece is a part of a collection of research that demonstrates how data-intensive systems that are built to deliver reproductive and maternal healthcare are not adequately prioritising equality and privacy.
Telemedicine describes the vast range of applications and technologies used to provide and manage healthcare remotely.
Telemedicine as its most basic refers to the transmission of data from a patient to a healthcare professional through a range of electronic…
Content type: News & Analysis
Earlier this week, the UK Government announced that no immigration status checks will be carried out for migrants trying to register with their GP and get vaccinated. But temporary offers of safety are not enough to undo the decades of harm caused by policies that have embedded immigration controls into public services.
Years of charging migrants for healthcare and sharing patient data with the Home Office has eroded trust between migrant communities and the NHS. As a result, they might not…
Content type: Advocacy
Last week, Privacy International joined more than 30 UK charities in a letter addressed to the British Prime Minister Boris Johnson, following his recent declaration, asking him to lift No Recourse to Public Funds (NRPF) restrictions.
Since 2012, a ‘NRPF condition’ has been imposed on all migrants granted the legal right to live and work in the UK. They are required to pay taxes, but they are not permitted to access the public safety net funded by those taxes.
This is not a topic we are known…
Content type: Long Read
On 12 April 2020, citing confidential documents, the Guardian reported Palantir would be involved in a Covid-19 data project which "includes large volumes of data pertaining to individuals, including protected health information, Covid-19 test results, the contents of people’s calls to the NHS health advice line 111 and clinical information about those in intensive care".
It cited a Whitehall source "alarmed at the “unprecedented” amounts of confidential health information being swept up in the…
Content type: Long Read
Today, migrant communities in the UK already face multiple well-documented obstacles in accessing healthcare, not least because of charges to access the National Health Service (NHS), as it is the case for non-EU migrants, and legitimate fears of data-sharing between the NHS and the Home Office.
In the current pandemic, in addition to these concerns, asylum-seekers face an impossible choice: risk exposure to coronavirus, or be unable to apply for asylum.
Individuals seeking…
Content type: Advocacy
The letter has been signed by more than 40 organisations and it is open for individuals to sign.
At the moment, the Department of Health and Social Care has given no assurance that NHS data will not be shared with the Home Office and used for immigration enforcement, including for those people with a confirmed coronavirus diagnosis.
Assurances which were confirmed by the Irish government as part of their response to COVID-19: last week, during a Parliamentary debate, Irish Minister of Health…