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Content type: News & Analysis
27th April 2021
Back in 2019, UK Health Secretary Matt Hancock announced a partnership between the NHS and Amazon Alexa. The goal of the partnership was for Alexa to be able to use the content of the NHS website when people asked health-related questions.
At the time, we expressed a number of concerns regarding this agreement: Amazon did not appear to be an actor that should be trusted with our health information, and seeing the Health Secretary publicly praising this new agreement appeared to give Amazon…
Content type: Long Read
17th December 2020
As we see Covid-19 vaccination programmes beginning around the world, for the first time since the start of the pandemic there seems to be a light at the end of the tunnel as the fruition of truly unrivalled global scientific efforts has given us hope of saving lives, reopening our societies, and going back to “normal”.
This great moment of hope must not be seen opportunistically as yet another data grab. The deployment of vaccines, and in particular any “immunity passport” or certificate…
Content type: News & Analysis
6th August 2020
No doubt this is turning out to be a summer full of news about internet companies' digital dominance.
In June, Google notified the European Commission of its plan to acquire Fitbit - a plan that we immediately identified would raise grave concerns for our well-being as consumers.
Today the European Commission has made its decision. And it's good news.
The European regulator has decided to undertake a detailed 'Phase 2' investigation, rather than just green light Google's plans, voicing also the…
Content type: Explainer
21st July 2020
Definition
An immunity passport (also known as a 'risk-free certificate' or 'immunity certificate') is a credential given to a person who is assumed to be immune from COVID-19 and so protected against re-infection. This 'passport' would give them rights and privileges that other members of the community do not have such as to work or travel.
For Covid-19 this requires a process through which people are reliably tested for immunity and there is a secure process of issuing a document or other…
Content type: News & Analysis
24th June 2020
Name: Google/Fitbit mergerAge: GestatingAppearance: A bit dodgy. One of the world’s biggest tech giants, trying to purchase a company that makes fitness tracking devices, and therefore has huge amounts of our health data.I don’t get it. Basically Google is trying to buy Fitbit. As if Google doesn’t already have enough data about us, it now wants huge amounts of health data too.Oh, Fitbit, that’s that weird little watch-type-thing that people get for Christmas, wear for about a month while they…
Content type: Press release
17th June 2020
On 15 June 2020, Google formally notified the European Commission of its proposed acquisition of Fitbit, enabling them to capture a massive trove of sensitive health data that will expand and entrench its digital dominance. Privacy International is calling on EU regulators to block the merger.
In November 2019, Google announced its plan to acquire Fitbit, a company that produces and sells health tracking technologies and wearables - including smartwatches, health trackers and smart scales -…
Content type: News & Analysis
22nd May 2020
This week, we read that a former Apple contractor who blew the whistle on the company’s programme to listen to users’ Siri recordings has decided to go public, in protest at the lack of action taken as a result of the July 2019 disclosures. The news adds to a series of revelations that have been reported over the past months.
While the issue raises serious questions regarding the compatibility of such practices with data protection laws, at the same time, it highlights a wider problem that…
Content type: Long Read
7th May 2020
This week saw the release of a coronavirus tracking app within the United Kingdom, initially to be trialled in the Isle of Wight. Privacy International has been following this closely, along with other ‘track and trace’ apps like those seen in over 30 other countries.
The UK’s app is no different. It is a small part of a public health response to this pandemic. As with all the other apps, it is vital that it be integrated with a comprehensive healthcare response, prioritise people, and…
Content type: Long Read
6th May 2020
On 12 April 2020, citing confidential documents, the Guardian reported Palantir would be involved in a Covid-19 data project which "includes large volumes of data pertaining to individuals, including protected health information, Covid-19 test results, the contents of people’s calls to the NHS health advice line 111 and clinical information about those in intensive care".
It cited a Whitehall source "alarmed at the “unprecedented” amounts of confidential health information being…
Content type: Press release
29th April 2020
Photo by Ashkan Forouzani on Unsplash
Today Privacy International, Big Brother Watch, medConfidential, Foxglove, and Open Rights Group have sent Palantir 10 questions about their work with the UK’s National Health Service (NHS) during the Covid-19 public health crisis and have requested for the contract to be disclosed.
On its website Palantir says that the company has a “culture of open and critical discussion around the implications of [their] technology” but the company have so far…
Content type: News & Analysis
10th April 2020
This week International Health Day was marked amidst a global pandemic which has impacted every region in the world. And it gives us a chance to reflect on how tech companies, governments, and international agencies are responding to Covid-19 through the use of data and tech.
All of them have been announcing measures to help contain or respond to the spread of the virus; but too many allow for unprecedented levels of data exploitation with unclear benefits, and raising so many red flags…
Content type: News & Analysis
17th October 2019
Photo by Ray Witlin / World Bank CC BY-NC-ND 2.0
This article has been written by Ambika Tandon, Policy Officer at the Centre for Internet and Society, in collaboration with Privacy International.
On October 17th 2019, the UN Special Rapporteur (UNSR) on Extreme Poverty and Human Rights, Philip Alston, released his thematic report on digital technology, social protection and human rights. Understanding the impact of technology on the provision of social protection – and, by extent, its…
Content type: Long Read
3rd September 2019
A new study by Privacy International reveals how popular websites about depression in France, Germany and the UK share user data with advertisers, data brokers and large tech companies, while some depression test websites leak answers and test results with third parties. The findings raise serious concerns about compliance with European data protection and privacy laws.
This article is part of a research led by Privacy International on mental health websites and tracking. Read our full report…
Content type: Long Read
22nd July 2019
Photo by David Werbrouck on Unsplash
This is an ongoing series about the ways in which those searching for abortion information and procedures are being traced and tracked online. This work is part of a broader programme of work aimed at safeguarding the dignity of people by challenging current power dynamics, and redefining our relationship with governments, companies, and within our own communities. As an enabling right, privacy plays an important role in supporting the exercise of…
Content type: Long Read
28th January 2019
The Privacy International Network is celebrating Data Privacy Week, where we’ll be talking about how trends in surveillance and data exploitation are increasingly affecting our right to privacy. Join the conversation on Twitter using #dataprivacyweek.
It is often communities who are already the most marginalised who are at risk because of the privacy invasions of data-intensive systems. Across the globe, we see the dangers of identity systems; the harms of online violence against women and the…
Content type: News & Analysis
11th July 2013
It is a long-standing privacy principle that an individual should have access to their personal information. This is particularly necessary in healthcare - after all there is nothing more personal than health information.
As the mass digitisation of health records increases, many issues arise about this access right. The right of 'subject access' comes with its own complexities. One challenge is that individuals can sometimes be compelled to conduct subject access requests in order to share…
Content type: News & Analysis
26th April 2013
We very much welcome today's announcement by Health Secretary Jeremy Hunt that people will be allowed to opt out of having their medical records shared in the NHS England centralised information bank.
The move is an important one for data privacy and patient choice, and has been a key objective of Privacy International in our collaboration with the new medConfidential (which launched yesterday). A month ago, NHS England (and the Director of Patients and Information) was refusing to offer any…
Content type: Press release
PI, Genewatch and the Council for Responsible Genetics launch the Forensic Genetic Policy Initiative
7th March 2012
Today, 60 countries worldwide operate national DNA databases, and at least 34 more are considering putting them in place. The use of DNA evidence in criminal investigations can bring great benefits to society, helping to solve crimes, convict the guilty and exonerate the innocent. However, the mass storage of DNA samples and computerized profiles in databases raises important human rights concerns. Your DNA profile can be used to track you or your relatives. Your DNA sample has the potential to…