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Content type: Long Read
Table of contentsIntroductionWeighing the (potential) benefits with the risksPrivacy rights and the right to healthThe right to healthPrivacy, data-protection and health dataThe right to health in the digital contextWhy the drive for digitalImproved access to healthcarePatient empowerment and remote monitoringBut these same digital solutions carry magnified risks…More (and more connected) dataData leaks and breachesData sharing without informed consentProfiling and manipulationTools are not…
Content type: Advocacy
Dejusticia, Fundación Karisma, and Privacy International submitted a joint stakeholder report on Colombia to the 44th session of the Universal Periodic Review at the UN Human Rights Council.Our submission raised concerns regarding the protection of the rights to freedom of expression and opinion, to privacy, and to personal data protection; the shutdown of civil society spaces; protection of the right to protest; and protection of the rights of the Venezuelan migrant and refugee population.…
Content type: Long Read
This piece is a part of a collection of research that demonstrates how data-intensive systems that are built to deliver reproductive and maternal healthcare are not adequately prioritising equality and privacy.
What are they?
Short Message Services (SMS) are being used in mobile health (MHealth) initiatives which aim to deliver crucial information to expecting and new mothers. These initiatives are being implemented in developing countries experiencing a large percentage of maternal and…
Content type: Long Read
For over 20 years with the start of the first use of ICTs in the 1990s, we have seen a digital revolution in the health sector. The Covid-19 pandemic significantly accelerated the digitalisation of the health sector, and it illustrates how fast this uptake can be and what opportunities can emerge; but also, importantly, the risks that it involves.
As we've said many times before, whilst technologies can be part of the solution to tackle some socio-economic and political challenges facing our…
Content type: Long Read
India’s Mother and Child Tracking System (MCTS) is a system that collects vast amounts of data about pregnant people, children, and families. It is an initiative by the Ministry of Health and Family Welfare in India, and was first trialled in 2009. It was then rolled out nation-wide in 2011. Its declared purpose, as stated in the press release accompanying it, was to facilitate “ensuring timely delivery of full spectrum of health care services to pregnant women and children up to 5 years of age…
Content type: Advocacy
On 6 August 2021, the World Health Organisation (WHO) published its technical specifications and implementation guidance for “Digital Documentation of COVID-19 Certificates: Vaccination Status” (DDCC:VS) following months of consultations. As governments around the world are deploying their own Covid-19 certificates, guidance from the global health agency was expected to set a global approach, and one that prioritises public health. As such, we would expect the WHO to identify what these…
Content type: News & Analysis
The Aspen Card - the debit payment card given to asylum seekers that PI has previously exposed as a de facto surveillance tool - will be outsourced to a new company. The contract with Sodexo has come to an end and the company Prepaid Financial Services will be taking over.
Our campaign for transparency in relation to the Aspen Card and how it monitors asylum seekers continues. Not only do we demand clarity from the Home Office [read more here], we believe the new provider, Prepaid Financial…
Content type: News & Analysis
This article was written by Jamila Venturini from Derechos Digitales. The original version (in Spanish) is available here.
While at the international level there is a growing demand to ban the use of surveillance technologies until rigorous human rights standards are achieved, in Latin America we observe a new and silent tendency to acquire and use such systems to control access to social protection, i.e., to policies developed to reduce poverty, social vulnerability and exclusion…
Content type: Long Read
This report is available in English.
La mayoría de los documentos nacionales de identidad y demás documentos emitidos por autoridades estatales incluyen un marcador de género. Estos marcadores suelen recibir el nombre de “marcador de sexo” aunque este término no sea preciso. La presencia de dichos marcadores, especialmente en los certificados de nacimiento, promueve el énfasis de nuestra sociedad en el género como criterio de asignación de identidades, roles y responsabilidades sociales. Al…
Content type: Long Read
As we see Covid-19 vaccination programmes beginning around the world, for the first time since the start of the pandemic there seems to be a light at the end of the tunnel as the fruition of truly unrivalled global scientific efforts has given us hope of saving lives, reopening our societies, and going back to “normal”.
This great moment of hope must not be seen opportunistically as yet another data grab. The deployment of vaccines, and in particular any “immunity passport” or certificate…
Content type: Explainer
At first glance, infrared temperature checks would appear to provide much-needed reassurance for people concerned about their own health, as well as that of loved ones and colleagues, as the lockdown is lifted. More people are beginning to travel, and are re-entering offices, airports, and other contained public and private spaces. Thermal imaging cameras are presented as an effective way to detect if someone has one of the symptoms of the coronavirus - a temperature.
However, there is little…
Content type: Case Study
As working from home is becoming the new normal, employees’ monitoring becomes the new norm.
Companies around the globe are increasingly using software to monitor how long we spend in front of our computer, what websites we visit and what apps we use, when we type, for how long and how fast, how long our mouse stay inactive — any more than 15 seconds away can shift us from ‘active’ to ‘idle’ — and require us to keep our camera and microphone on at all times. These systems pit us against our…
Content type: Report
SUMMARY
In the UK, local authorities* are looking at people’s social media accounts, such as Facebook, as part of their intelligence gathering and investigation tactics in areas such as council tax payments, children’s services, benefits and monitoring protests and demonstrations.
In some cases, local authorities will go so far as to use such information to make accusations of fraud and withhold urgently needed support from families who are living in extreme poverty.
THE PROBLEM
Since 2011…
Content type: Advocacy
To the Members of the European Parliament and to the Committee on Budgets of the European Parliament
The EU urgently needs to step up and provide assistance to protect the health and safety of people trapped in camps on the Greek islands - not just to protect their welfare, but to contain the virus itself as a matter of global public health.
However, as we detail in the briefing below, the current European Commission proposal for funds allocation is insufficient to ensure the safety of…
Content type: News & Analysis
This week International Health Day was marked amidst a global pandemic which has impacted every region in the world. And it gives us a chance to reflect on how tech companies, governments, and international agencies are responding to Covid-19 through the use of data and tech.
All of them have been announcing measures to help contain or respond to the spread of the virus; but too many allow for unprecedented levels of data exploitation with unclear benefits, and raising so many red flags…
Content type: Long Read
This piece was written by Aayush Rathi and Ambika Tandon, who are policy officers at the Centre for Internet and Society (CIS) in India. The piece was originally published on the website Economic Policy Weekly India here.
In order to bring out certain conceptual and procedural problems with health monitoring in the Indian context, this article posits health monitoring as surveillance and not merely as a “data problem.” Casting a critical feminist lens, the historicity of surveillance practices…
Content type: Advocacy
TEDIC, InternetLab, Derechos Digitales, la Fundación Karisma, Dejusticia, la Asociación por los Derechos Civiles y Privacy International acogen el llamado de la Relatoría Especial sobre Derechos Económicos, Sociales, Culturales y Ambientales (DESCA) de la Comisión Interamericana de Derechos Humanos (CIDH) de enviar información para la elaboración del Informe Anual sobre DESCA del año 2019, que se presentará ante la Organización de los Estados Americanos (OEA) en 2020.
El objeto de este…
Content type: Advocacy
TEDIC, InternetLab, Derechos Digitales, Fundación Karisma, Dejusticia, Asociación por los Derechos Civiles and Privacy International welcome the call made by the Special Rapporteurship on Economic, Social, Cultural and Environmental Rights (ESCER) of the Inter-American Commission on Human Rights (IACHR) to inform the preparation of the Annual Report of the ESCER for the year 2019, which will be presented to the Organization of American States (OAS) during 2020.
This submission aims to outline…
Content type: Long Read
This research is the result of a collaboration between Grace Tillyard, a doctoral researcher in the Media, Communications and Cultural Studies department at Goldsmiths College, London, and Privacy International.
Social Protection Systems in the Digital Age
In the digital age, governments across the world are building technologically integrated programmes to allow citizens to access welfare payments. While smart and digital technologies hold the potential to streamline administrative…
Content type: Examples
In October 2018, in response to questions from a committee of MPs, the UK-based Student Loans Company defended its practice of using "public" sources such as Facebook posts and other social media activity as part of the process of approving loans. In one case earlier in the year, a student was told that a parent's £70 Christmas present meant the student did not qualify for a maintenance loan without means testing because it meant the student was not estranged from their family. SLC insisted…
Content type: Examples
In February 2019, the World Food Programme, a United Nations aid agency, announced a five-year, $45 million partnership with the data analytics company Palantir. WFP, the world's largest humanitarian organisation focusing on hunger and food security, hoped that Palantir, better known for partnering with police and surveillance agencies, could help analyse large amounts of data to create new insights from the data WFP collects from the 90 million people in 80 countries to whom it distributes 3…
Content type: Examples
Absher, an online platform and mobile phone app created by the Saudi Arabian government, can allow men to restrict women’s ability to travel, live in Saudi Arabia, or access government services. This app, which is available in the Google and Apple app stores, supports and enables the discriminatory male guardianship system in Saudi Arabia and violations of womens’ rights, including the right to leave and return to one’s own country. Because women in Saudi Arabia are required to have a male…
Content type: Examples
In Israel, the National Insurance Institute – in charge of granting benefits – eventually dropped a tender that had caused outrage in the country after being uncovered by Haaretz and Channel 13. The tender revealed the NII was trying to collect online data about benefits claimants – including from social media – to detect cases of frauds. The tender used wheelchair users as an example, suggesting that finding pictures of alleged wheelchair users using bikes on social media could contribute to…
Content type: Examples
The rise of social media has also been a game changer in the tracking of benefits claimants. In the UK in 2019, a woman was jailed after she was jailed for five months after pictures of her partying in Ibiza emerged on social media. She had previously sued the NHS for £2.5 million, after surviving a botched operation. She had argued the operation had left her disabled and the “shadow of a former self” but judges argued that the pictures suggested otherwise.
https://www.dailymail.co.uk/news/…
Content type: Examples
The rise of social media has also been a game changer in the tracking of benefits claimants. Back in 2009, the case of Nathalie Blanchard a woman in Quebec who had lost her disability insurance benefits for depression because she looked “too happy” on her Facebook pictures had made the news.
https://abcnews.go.com/Technology/AheadoftheCurve/woman-loses-insurance-benefits-facebook-pics/story?id=9154741
Author: Ki Mae Heussner
Publication: ABC News
Content type: Examples
Documents submitted as part of a 2015 US National Labor Relations Board investigation show that Walmart, long known to be hostile to unions, spied on and retaliated against a group of employees who sought higher wages, more full-time jobs, and predictable schedules. In combating the group, who called themselves the Organization United for Respect at Walmart (OUR Walmart), Walmart hired an intelligence-gathering service from Lockheed Martin, contacted the FBI, and set up an internal Delta team…
Content type: Long Read
Privacy International is celebrating Data Privacy Week, where we’ll be talking about privacy and issues related to control, data protection, surveillance and identity. Join the conversation on Twitter using #dataprivacyweek.
Exercising the right to privacy extends to the ability of accessing and controlling our data and information, the way it is being handled, by whom, and for what purpose. This right is particularly important when it comes to control of how States perform these activities.…
Content type: Examples
In 2016, researchers discovered that the personalisation built into online advertising platforms such as Facebook is making it easy to invisibly bypass anti-discrimination laws regarding housing and employment. Under the US Fair Housing Act, it would be illegal for ads to explicitly state a preference based on race, colour, religion, gender, disability, or familial status. Despite this, some policies - such as giving preference to people who already this - work to ensure that white…
Content type: News & Analysis
Privacy International today is proud to announce our new project, Aiding Privacy, which aims to promote the right to privacy and data protection in the development and humanitarian fields. Below is an outline of the issues addressed in our new report released today, Aiding Surveillance.
New technologies hold great potential for the developing world. The problem, however, is that there has been a systematic failure to critically contemplate the potential ill effects of deploying technologies in…
Content type: News & Analysis
Facebook's new "Download your Information" feature reveals a radically different interpretation of transparency to one that the rest of us in Europe might hold. The feature may be a promising start, but the company still clearly has difficulty understanding the requirements of European Data Protection law. The feature provides only a fraction of the personal information held by Facebook and is thus still in violation of law.
The company may escape a prosecution under the UK Trades Description…