Advanced Search
Content Type: Advocacy
In August 2023, the UK Westminster Women and Equalities Committee launched a call for evidence into a short inquiry on women’s reproductive health.We submitted a response highlighting the increasing management of women’s reproductive healthcare through digital health initiatives. We raised concerns that these technologies can be privacy-invasive and result in highly sensitive personal information being shared in unexpected and potentially dangerous ways. We encouraged the Committee to ensure…
Content Type: Long Read
The rise of the gig-economy, a way of working relying on short term contracts and temporary jobs rather than on an employed workforce, has enabled the growth of a number of companies over the last few years. But without the rights that comes with full employment, gig economy workers today don't have access to essential protections.
In 2021, PI worked with ACDU and Worker Info Exchange to shed a light on the power imbalance between workers and gig economy platforms, exposing how workers find…
Content Type: News & Analysis
The relationship between privacy and access to abortion care
In 1973, in the state of Texas, it was a criminal offence to “procure or attempt” an abortion except if the purpose was “saving the life of the mother.” This law was enacted in 1854 by the Texas state legislature, and was part of a wave of provisions criminalising access to abortion care that was gaining ground across the U.S in the mid-1800s. It is worth highlighting that these laws were being passed at a time when women in the U.S…
Content Type: Long Read
In the wake of the recent news of the US Supreme Court’s decision to overturn the ruling of Roe v Wade in its ruling in Dobbs v Jackson Women's Health Organization, headlines have been dominated by conversations around privacy and fears of how the criminalisation of abortion care and surveillance by law enforcement will play out in a tech driven world.This discussion is increasingly important as governments move towards digitising their healthcare systems and as more individuals choose to…
Content Type: Long Read
In 2019, we exposed the practices of five menstruation apps that were sharing your most intimate data with Facebook and other third parties. We were pleased to see that upon the publication of our research some of them decided to change their practices. But we always knew the road to effective openness, transparency, informed consent and data minimisation would be a long one when it comes to apps, which for the most part make profit from our menstrual cycle and even sometimes one’s desire to…
Content Type: Explainer
At first glance, infrared temperature checks would appear to provide much-needed reassurance for people concerned about their own health, as well as that of loved ones and colleagues, as the lockdown is lifted. More people are beginning to travel, and are re-entering offices, airports, and other contained public and private spaces. Thermal imaging cameras are presented as an effective way to detect if someone has one of the symptoms of the coronavirus - a temperature.
However, there is little…
Content Type: News & Analysis
Photo by Jake Hills on UnsplashOur research has shown how some apps like Maya by Plackal Tech and MIA by Mobbap Development Limited were – at the time of the research – sharing your most intimate data about your sexual life and medical history with Facebook.Other apps like Mi Calendario, Ovulation Calculator by Pinkbird and Linchpin Health were letting Facebook know every time you open the app.We think companies like theses should do better and we are pleased to see some of them have already…
Content Type: Video
Research by Privacy International revealed some menstruation apps share sensitive personal data, including their user's health data and data about their sexual lives. Christopher Weatherhead - Technology lead at Privacy International - interviews Eva Blum-Dumontet, project manager for "No Body's Business But Mine" about the findings of the research.
Content Type: Long Read
In December 2018, Privacy international exposed the dubious practices of some of the most popular apps in the world.
Out of the 36 apps we tested, we found that 61% automatically transfer data to Facebook the moment a user opens the app. This happens whether the user has a Facebook account or not, and whether they are logged into Facebook or not. We also found that some of those apps routinely send Facebook incredibly detailed and sometimes sensitive personal data. Again, it didn’t matter if…
Content Type: Examples
The pregnancy apps many women were using in December 2018 proved to be incapable of handling miscarriages, even though up to 20% of all known pregnancies end this way. There are only two choices: allow the apps to continue sending alerts celebrating the pregnancy's progress or delete the pregnancy entirely, losing all the records they'd saved - information that doctors routinely request. Many menstruation apps, similarly, lack the ability to adapt to long breaks and disrupted cycles, and many…
Content Type: Long Read
Whilst innovation in technology and data processing have provided individuals and communities with new opportunities to exercise their fundamental rights and freedoms, this has not come without risks, and these opportunities have not been enjoyed by all equally and freely.
Our relationships and interactions with governments and industry have become increasingly dependent on us providing more and more data and information about ourselves. And, it’s not only the information we provide knowingly…
Content Type: Examples
In February 2019, an anonymous tip-off to Computer Sweden revealed that a database containing recordings of 170,000 hours of calls made to the Vårdguiden 1177 non-emergency healthcare advice line was left without encryption or password protection on an open web server provided by Voice Integrate Nordic AB. After the breach was discovered, MedHelp, which runs the 1177 service, shut the server down and found that 55 call files had been illegally downloaded from seven different IP addresses. Nine…
Content Type: Examples
In January 2019, it was discovered that the HIV-positive status of 14,200 people in Singapore, as well as their identification numbers and contact details, had been leaked online. According to a statement of the Ministry of Health, records leaked include 5,400 Singaporeans diagnosed as HIV-positive before January 2013, and 8,800 foreigners diagnosed before December 2011. Patient names, identification numbers, phone numbers, addresses, HIV test results and medical information was included in the…
Content Type: News & Analysis
Below is the introduction to Privacy International's 2017 International Women's Day report, which highlights the recent work of the PI Network on privacy, surveillance, and gender.
Many of the challenges at the intersection of women’s rights and technology as it relates to privacy and surveillance, come down to control. Such challenges have come sharply into focus as societies trend toward surveillance by default and foster data exploitative ecosystem.
And whilst control, in the context of…
Content Type: News & Analysis
It is a long-standing privacy principle that an individual should have access to their personal information. This is particularly necessary in healthcare - after all there is nothing more personal than health information.
As the mass digitisation of health records increases, many issues arise about this access right. The right of 'subject access' comes with its own complexities. One challenge is that individuals can sometimes be compelled to conduct subject access requests in…
Content Type: News & Analysis
We very much welcome today's announcement by Health Secretary Jeremy Hunt that people will be allowed to opt out of having their medical records shared in the NHS England centralised information bank.
The move is an important one for data privacy and patient choice, and has been a key objective of Privacy International in our collaboration with the new medConfidential (which launched yesterday). A month ago, NHS England (and the Director of…
Content Type: Report
This report is the result of research conducted by researchers at Privacy International, coordinated by the London School of Economics and Political Science. The report was commissioned by the International Development Research Centre.
New technologies such as mobile phones and electronic medical record (EMR) systems promise to transform the provision and management of medicine all over the world. In the U.S. alone, billions are being spent on information technologies for healthcare.
Content Type: Report
New technologies such as mobile phones and electronic medical record (EMR) systems promise to transform the provision and management of medicine all over the world. In the U.S. alone, billions are being spent on information technologies for healthcare.
This eHealth revolution could be a boon for patient privacy if the right protections are built into new health information systems; however there are growing worries that privacy and security are being overlooked by designers rushing to deploy…
Content Type: Press release
PI, Genewatch and the Council for Responsible Genetics launch the Forensic Genetic Policy Initiative
Today, 60 countries worldwide operate national DNA databases, and at least 34 more are considering putting them in place. The use of DNA evidence in criminal investigations can bring great benefits to society, helping to solve crimes, convict the guilty and exonerate the innocent. However, the mass storage of DNA samples and computerized profiles in databases raises important human rights concerns. Your DNA profile can be used to track you or your relatives. Your DNA sample has the…