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Content type: Long Read
IntroductionData about our health reveals some of the most sensitive, intimate - and potentially embarrassing - information about who we are. Confidentiality is, and has always been, at the very heart of medical ethics. People need to be able to trust their doctors, nurses and other healthcare providers so that they are not afraid to tell them something important about their health for fear of shame, judgement or social exclusion.It’s no surprise then that data protection regimes around…
Content type: Advocacy
In our submission we outline our concerns with the industry as a result of extensive technical research and complaints taken to data protection authorities in Europe as a result.
Data brokers must specifically be included in "actors in scope."
We recommend that "data brokers" are specifically included in the list of "actors in scope". A data broker is a company that collects, buys and sells personal data and this is often how they earn their primary revenue. It is a term that is entering…
Content type: News & Analysis
What if we told you that every photo of you, your family, and your friends posted on your social media or even your blog could be copied and saved indefinitely in a database with billions of images of other people, by a company you've never heard of? And what if we told you that this mass surveillance database was pitched to law enforcement and private companies across the world?
This is more or less the business model and aspiration of Clearview AI, a company that only received worldwide…
Content type: Examples
Article extract- translated from the original French.
"A political big data company with close ties to the federal liberals and which worked on Emmanuel Macron's campaign in France is setting up its head office in Old Montreal to continue its growth and take advantage of Montreal's digital vitality.
Data Sciences inc. (DS) was born from the victory of the Liberal Party of Canada (PLC) in the last election. Tom Pitfield, a close friend of Justin Trudeau, was leading digital operations during…
Content type: News & Analysis
In September 2019, PI published the report Your Mental Health for Sale. Our investigation looked into popular mental health websites and their data sharing practices.
Our findings suggest that, at the time of the research, most websites we looked at were using third party tracking for advertising purposes, sometimes relying on programmatic advertising technologies such as Real Time Bidding (RTB), sharing personal data with potentially thousands of actors. Some websites were also found sharing…
Content type: News & Analysis
GDPR was hard won. PI, together with other civil society actors, fought from the beginning for a version of the law that offers the strongest rights and protections in the face of intense industry lobbying.
Holding the hidden data ecosystem to account
Two years ago, we committed to using GDPR to seek to hold to account the hidden data ecosystem - those companies that amass and exploit large amounts of our data for profit.
Here’s some of the action we’ve taken:
In Nov 2018,…
Content type: Long Read
Covid Apps are on their way to a phone near you. Is it another case of tech-solutionism or a key tool in our healthcare response to the pandemic? It’s fair to say that nobody quite knows just yet.
We’ve been tracking these apps since the early days. We’ve been monitoring Apple and Google closely, have been involved in the UK’s app process, our partners in Chile and Peru have been tracking their governments’ apps, and more.
Of course privacy concerns arise. But only a simplistic analysis would…
Content type: Report
The changes discussed in this article are based on a second analysis performed in late November, 3 months after the original study Your Mental Health is for Sale and following the exact same methodology. All data collected can be found at the bottom of this page.
Change is possible
Back in September 2019 we published the report Your Mental Health is for Sale exposing how a majority of the top websites related to mental health in France, Germany and the UK share data for advertising purposes.…
Content type: Long Read
A new study by Privacy International reveals how popular websites about depression in France, Germany and the UK share user data with advertisers, data brokers and large tech companies, while some depression test websites leak answers and test results with third parties. The findings raise serious concerns about compliance with European data protection and privacy laws.
This article is part of a research led by Privacy International on mental health websites and tracking. Read our…
Content type: Report
The full report of Privacy International's study on how popular websites about depression in France, Germany and the UK share user data with advertisers, data brokers and large tech companies, while some depression test websites leak answers and test results with third parties. The findings raise serious concerns about compliance with European data protection and privacy laws.
Content type: News & Analysis
This article is part of a research led by Privacy International on mental health websites and tracking. Read our full report.
According to the World Health Organisation (WHO), 25 percent of the European population suffers from depression or anxiety each year, yet about 50% of major depressions remain untreated. This means that everyday thousands of people are looking for information about depression online. They take tests to find out how serious their symptoms are, they try to access…
Content type: Advocacy
Dear Chair and Committee colleagues,
Privacy International is an international NGO, based in London, which works with partners around the world to challenge state and corporate surveillance and data exploitation. As part of our work, we have a dedicated programme “Defending Democracy and Dissent” where we advocate for limits on data exploitation throughout the electoral cycle.
We have been closely following the important work of the Committee. Prompted by the additional evidence provided…
Content type: Press release
The Irish Data Protection Commission has today launched an inquiry into the data practices of ad-tech company Quantcast, a major player in the online tracking industry. PI's 2018 investigation and subsequent submission to the Irish DPC showed how the company is systematically collecting and exploiting people's data in ways people are unaware of. PI also investigated and complained about Acxiom, Criteo, Experian, Equifax, Oracle, and Tapad.
PI welcomes this announcement and its focus on…
Content type: Long Read
Image Source: "Voting Key" by CreditDebitPro is licensed under CC BY 2.0
Democratic society is under threat from a range of players exploiting our data in ways which are often hidden and unaccountable. These actors are manifold: traditional political parties (from the whole political spectrum), organisations or individuals pushing particular political agendas, foreign actors aiming at interfering with national democratic processes, and the industries that provide products that …
Content type: News & Analysis
The first half of 2018 saw two major privacy moments: in March, the Facebook/ Cambridge Analytica scandal broke, followed in May by the EU General Data Protection Regulation ("GDPR") taking effect. The Cambridge Analytica scandal, as it has become known, grabbed the attention and outrage of the media, the public, parliamentarians and regulators around the world - demonstrating that yes, people do care about violations of their privacy and abuse of power. This scandal has been one of…
Content type: News & Analysis
Email addresses
Acxiom: [email protected]
Criteo: [email protected]
Equifax: [email protected]
Experian: [email protected]
Oracle: https://oracle.ethicspointvp.com/custom/oracle/dp/en/form_data.asp
Quantcast: [email protected] cc: [email protected]
Tapad: [email protected]
Letter for Acxiom and Oracle
subject line: Right to Erasure Request
I am concerned your company exploits my data.
In accordance with my right[s] under the General Data…
Content type: News & Analysis
Our team wanted to see how data companies that are not used to being in the public spotlight would respond to people exercising their data rights. You have the right under the EU General Data Protection Regulation ("GDPR") to demand that companies operating in the European Union (either because they are based here or target their products or services to individuals in the EU) delete your data within one month. We wrote to seven companies and requested that they delete our data, and we've made…
Content type: Press release
Today, Privacy International has filed complaints against seven data brokers (Acxiom, Oracle), ad-tech companies (Criteo, Quantcast, Tapad), and credit referencing agencies (Equifax, Experian) with data protection authorities in France, Ireland, and the UK. Privacy International urges the data protection authorities to investigate these companies and to protect individuals from the mass exploitation of their data.
Our complaints target companies that, despite exploiting the data of millions of…
Content type: Advocacy
Today, Privacy International has filed complaints against seven data brokers (Acxiom, Oracle), ad-tech companies (Criteo, Quantcast, Tapad), and credit referencing agencies (Equifax, Experian) with data protection authorities in France, Ireland, and the UK.
It’s been more than five months since the EU’s General Data Protection Regulation (GDPR) came into effect. Fundamentally, the GDPR strengthens rights of individuals with regard to the protection of their data, imposes more…
Content type: Advocacy
Today, Privacy International has filed complaints against seven data brokers (Acxiom, Oracle), ad-tech companies (Criteo, Quantcast, Tapad), and credit referencing agencies (Equifax, Experian) with data protection authorities in France, Ireland, and the UK.
It’s been more than five months since the EU’s General Data Protection Regulation (GDPR) came into effect. Fundamentally, the GDPR strengthens rights of individuals with regard to the protection of their data, imposes more…
Content type: Long Read
It’s 15:10 pm on April 18, 2018. I’m in the Privacy International office, reading a news story on the use of facial recognition in Thailand. On April 20, at 21:10, I clicked on a CNN Money Exclusive on my phone. At 11:45 on May 11, 2018, I read a story on USA Today about Facebook knowing when teen users are feeling insecure.
How do I know all of this? Because I asked an advertising company called Quantcast for all of the data they have about me.
Most people will have never heard of…
Content type: Long Read
To mark International Women’s Day 2018, Privacy International and some of our partner organisations - Datos Protegidos, Derechos Digitales, the National Coalition for Human Rights Defenders-Kenya, the Karisma Foundation, and the Foundation for Media Alternatives – are telling the stories of women across the world as told by their data over the next seven days (for us, it’s International Women’s Week!).
Gender inequality has many complex dimensions and data exploitation is yet another.…
Content type: News & Analysis
Written by Privacy International
07:06: Camille’s smart pillow sends a signal to her smartphone that it’s time for her to wake up. She checks the quality of sleep on the app – last night was not great. Because the pillow tracks the motion in her bed, the company knows what else she may (or may not) have been up to. But the company doesn’t just track her when she is in bed. By downloading the app, Camille has also authorised access to her location wherever she goes, her camera, her contact…
Content type: Press release
The global watchdog Privacy International has today simultaneously filed complaints against Google's controversial Gmail service with privacy regulators in sixteen countries.
The move creates Google's biggest challenge yet in the short but turbulent public debate over its new email service.
Complaints have been filed with the privacy and data protection regulators of France, Germany, the Netherlands, Greece, Italy, Spain, Czech Republic, Belgium, Denmark, Sweden, Ireland, Portugal, Poland,…