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Content type: Long Read
24th February 2020
This piece was written by Aayush Rathi and Ambika Tandon, who are policy officers at the Centre for Internet and Society (CIS) in India. The piece was originally published on the website Economic Policy Weekly India here.
In order to bring out certain conceptual and procedural problems with health monitoring in the Indian context, this article posits health monitoring as surveillance and not merely as a “data problem.” Casting a critical feminist lens, the historicity of surveillance practices…
Content type: Examples
26th March 2020
Because tracking and limiting the movement of those suspected to be carrying COVID-19 carriers has been a factor in flattening the exponential curve of cases in places like Singapore, Taiwan, and South Korea, Professor Marylouise McLaws, a technical advisor to the WHO's Infection Prevention and Control Global Unit and a professor at the University of New South Wales, believes that we should use travellers' smartphones to electronically monitor their compliance with self-isolation orders. …
Content type: Examples
1st April 2020
The UK's National Health Service is collaborating with Palantir to launch a data platform that will track the movement of critical staff and materials; it will, for the first time, give ministers a dashboard showing the first-ever comprehensive view of the entire health care system. The data Palantir gathers into a data store from across the health sector will not include individual patient data; instead, it will include A&E capacity, calls to the NHS 111 hotline, and the number and…
Content type: Long Read
7th May 2020
This week saw the release of a coronavirus tracking app within the United Kingdom, initially to be trialled in the Isle of Wight. Privacy International has been following this closely, along with other ‘track and trace’ apps like those seen in over 30 other countries.
The UK’s app is no different. It is a small part of a public health response to this pandemic. As with all the other apps, it is vital that it be integrated with a comprehensive healthcare response, prioritise people, and…
Content type: Examples
2nd May 2018
In 2012, London Royal Free, Barnet, and Chase Farm hospitals agreed to provide Google's DeepMind subsidiary with access to an estimated 1.6 million NHS patient records, including full names and medical histories. The company claimed the information, which would remain encrypted so that employees could not identify individual patients, would be used to develop a system for flagging patients at risk of acute kidney injuries, a major reason why people need emergency care. Privacy campaigners…
Content type: News & Analysis
17th October 2019
Photo by Ray Witlin / World Bank CC BY-NC-ND 2.0
This article has been written by Ambika Tandon, Policy Officer at the Centre for Internet and Society, in collaboration with Privacy International.
On October 17th 2019, the UN Special Rapporteur (UNSR) on Extreme Poverty and Human Rights, Philip Alston, released his thematic report on digital technology, social protection and human rights. Understanding the impact of technology on the provision of social protection – and, by extent, its…
Content type: Examples
24th March 2020
The Thai Tech Startup Association, Department of Disease Control (Ministry of Public Health), Digital Economy Promotion Agency (Ministry of Digital Economy and Society), and National Innovation Agency have developed a questionnaire on an app which as adverised on the Thai Tech Startup Associaiton the questionnaire is designed for people to self-assess if they are in high risk or not. Developed by the Department of Diseases the questionnaire asks a variety of questions related to symptoms and…
Content type: Examples
1st December 2017
In 2015, the Swedish startup hub Epicenter began offering employees microchip implants that unlock doors, operate printers, and pay for food and drink. By 2017, about 150 of the 2,000 workers employed by the hub's more than 100 companies had accepted the implants. Epicenter is just one of a number of companies experimenting with this technology, which relies on Near Field Communication (NFC). The chips are biologically safe, but pose security and privacy issues by making it possible to track…
Content type: Examples
17th May 2019
In February 2019, an anonymous tip-off to Computer Sweden revealed that a database containing recordings of 170,000 hours of calls made to the Vårdguiden 1177 non-emergency healthcare advice line was left without encryption or password protection on an open web server provided by Voice Integrate Nordic AB. After the breach was discovered, MedHelp, which runs the 1177 service, shut the server down and found that 55 call files had been illegally downloaded from seven different IP addresses. Nine…
Content type: Advocacy
23rd April 2020
Background
In February 2020, the Australian Competition and Consumer Commission (ACCC) commenced an investigation into the proposed acquisition of Fitbit by Google, which was originally announced in November 2019.
Google, whose parent company, Alphabet, in 2018, generated 85% of its $136.22 billion in revenue from delivering targeted advertisements, has a past of competition law infringements in the European Union. Fitbit is a company that produces and sells health tracking technologies and…
Content type: Examples
26th March 2020
The new Singaporean app, TraceTogether, developed by the Government Technology Agency in collaboration with the Ministry of Health was launched on March 20 after eight weeks of development. The app, which can be downloaded by anyone with a Singapore mobile number and a Bluetooth-enabled smartphone, asks users to turn on Bluetooth and location services, and enable push notifications. The app works by exchanging short-distance Bluetooth signals between phones to detect other users within two…
Content type: News & Analysis
11th July 2013
It is a long-standing privacy principle that an individual should have access to their personal information. This is particularly necessary in healthcare - after all there is nothing more personal than health information.
As the mass digitisation of health records increases, many issues arise about this access right. The right of 'subject access' comes with its own complexities. One challenge is that individuals can sometimes be compelled to conduct subject access requests in order to share…
Content type: Report
3rd September 2019
The full report of Privacy International's study on how popular websites about depression in France, Germany and the UK share user data with advertisers, data brokers and large tech companies, while some depression test websites leak answers and test results with third parties. The findings raise serious concerns about compliance with European data protection and privacy laws.
Content type: Long Read
3rd September 2019
A new study by Privacy International reveals how popular websites about depression in France, Germany and the UK share user data with advertisers, data brokers and large tech companies, while some depression test websites leak answers and test results with third parties. The findings raise serious concerns about compliance with European data protection and privacy laws.
This article is part of a research led by Privacy International on mental health websites and tracking. Read our full report…
Content type: Press release
17th June 2020
On 15 June 2020, Google formally notified the European Commission of its proposed acquisition of Fitbit, enabling them to capture a massive trove of sensitive health data that will expand and entrench its digital dominance. Privacy International is calling on EU regulators to block the merger.
In November 2019, Google announced its plan to acquire Fitbit, a company that produces and sells health tracking technologies and wearables - including smartwatches, health trackers and smart scales -…
Content type: Press release
29th April 2020
Photo by Ashkan Forouzani on Unsplash
Today Privacy International, Big Brother Watch, medConfidential, Foxglove, and Open Rights Group have sent Palantir 10 questions about their work with the UK’s National Health Service (NHS) during the Covid-19 public health crisis and have requested for the contract to be disclosed.
On its website Palantir says that the company has a “culture of open and critical discussion around the implications of [their] technology” but the company have so far…
Content type: News & Analysis
26th April 2013
We very much welcome today's announcement by Health Secretary Jeremy Hunt that people will be allowed to opt out of having their medical records shared in the NHS England centralised information bank.
The move is an important one for data privacy and patient choice, and has been a key objective of Privacy International in our collaboration with the new medConfidential (which launched yesterday). A month ago, NHS England (and the Director of Patients and Information) was refusing to offer any…
Content type: Press release
PI, Genewatch and the Council for Responsible Genetics launch the Forensic Genetic Policy Initiative
7th March 2012
Today, 60 countries worldwide operate national DNA databases, and at least 34 more are considering putting them in place. The use of DNA evidence in criminal investigations can bring great benefits to society, helping to solve crimes, convict the guilty and exonerate the innocent. However, the mass storage of DNA samples and computerized profiles in databases raises important human rights concerns. Your DNA profile can be used to track you or your relatives. Your DNA sample has the potential to…
Content type: Examples
26th March 2020
On March 20, the Peruvian government introduced a website where citizens can retrieve the results of tests for COVID-19. The site asks only for the patient to fill in their National ID number and a simple captcha, making it easy for unauthorised parties to access others' results and put people at risk of exploitation and discrimination.
Source: https://saludconlupa.com/noticias/peru-debilidades-de-plataforma-del-ministerio-de-salud-pueden-exponer-informacion-clinica-de-pacientes-covid-19/…
Content type: News & Analysis
24th June 2020
Name: Google/Fitbit mergerAge: GestatingAppearance: A bit dodgy. One of the world’s biggest tech giants, trying to purchase a company that makes fitness tracking devices, and therefore has huge amounts of our health data.I don’t get it. Basically Google is trying to buy Fitbit. As if Google doesn’t already have enough data about us, it now wants huge amounts of health data too.Oh, Fitbit, that’s that weird little watch-type-thing that people get for Christmas, wear for about a month while they…
Content type: Examples
30th March 2020
Together with Norwegian company Simula the Norwegian Institute of Public Health is developping a voluntary app to track users geolocation and slow the spread of Covid-19. Running in the background, the app will collect GPS and Bluetooth location data and store them on a server for 30 days. If a user is diagnosed with the virus, its location data can be user to trace all the phones that have been in close contact with the person. Authorities will use this data to send an SMS only to those phones…
Content type: Examples
24th July 2020
The New Zealand MP Hamish Walker, a member of the centre-right opposition National party, admitted leaking the details of all the country’s 18 active COVID-19 cases to the media in order to “expose the government’s shortcoming”. Walker said he had been advised that his actions were not illegal. The government has announced an independent inquiry.
Publication: Guardian
Writer: Eleanor Ainge Roy
Content type: Examples
26th March 2020
At the MIT Media lab, Ramesh Raskar is leading a team that includes software engineers at companies such as Facebook and Uber to develop the free and open source app Private Kit: Safe Paths. The app is intended to share encrypted information between phones in the network without going through a central authority so that individuals can see if they've come in contact with someone carrying the coronavirus. Anyone who tests positive can choose to share location data with health officials, who can…
Content type: Report
6th February 2020
The changes discussed in this article are based on a second analysis performed in late November, 3 months after the original study Your Mental Health is for Sale and following the exact same methodology. All data collected can be found at the bottom of this page.
Change is possible
Back in September 2019 we published the report Your Mental Health is for Sale exposing how a majority of the top websites related to mental health in France, Germany and the UK share data for advertising purposes.…
Content type: Report
5th May 2012
This report is the result of research conducted by researchers at Privacy International, coordinated by the London School of Economics and Political Science. The report was commissioned by the International Development Research Centre.
New technologies such as mobile phones and electronic medical record (EMR) systems promise to transform the provision and management of medicine all over the world. In the U.S. alone, billions are being spent on information technologies for healthcare.
Content type: Report
14th March 2012
New technologies such as mobile phones and electronic medical record (EMR) systems promise to transform the provision and management of medicine all over the world. In the U.S. alone, billions are being spent on information technologies for healthcare.
This eHealth revolution could be a boon for patient privacy if the right protections are built into new health information systems; however there are growing worries that privacy and security are being overlooked by designers rushing to deploy…
Content type: Call to Action
18th June 2020
Google wants to know everything about you.
It already holds a massive trove of data about you, but by announcing its plans to acquire the health and fitness tracker company Fitbit, it now clearly wants to get its hands on your health too. We don’t think any company should be allowed to accumulate this much intimate information about you. This is why we’re trying to stop its merger with Fitbit.
Google and Fitbit need the European Commission’s approval before they can merge. The merger would…
Content type: Long Read
1st May 2020
UPDATE 21/07/2020: On Monday July 20th, the Israeli parliament approved a new bill allowing the Ministry of Health to rely again on the Intelligence Services to track people who may have been exposed to Covid 19 when the number of new cases reaches 200 and above per day. The authorisation is then granted for three weeks and can be extended if the numbers have not decreased. The new law will be effective until January 2021. As of July 21st and for at least the next three weeks, the Intelligence…
Content type: News & Analysis
10th April 2020
This week International Health Day was marked amidst a global pandemic which has impacted every region in the world. And it gives us a chance to reflect on how tech companies, governments, and international agencies are responding to Covid-19 through the use of data and tech.
All of them have been announcing measures to help contain or respond to the spread of the virus; but too many allow for unprecedented levels of data exploitation with unclear benefits, and raising so many red flags…
Content type: Explainer
30th July 2020
At first glance, infrared temperature checks would appear to provide much-needed reassurance for people concerned about their own health, as well as that of loved ones and colleagues, as the lockdown is lifted. More people are beginning to travel, and are re-entering offices, airports, and other contained public and private spaces. Thermal imaging cameras are presented as an effective way to detect if someone has one of the symptoms of the coronavirus - a temperature.
However, there is little…