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Content type: Long Read
IntroductionHarnessing new digital technology to improve people’s health is now commonplace across the world. Countries and international organisations alike are devising digital health strategies and looking to emerging technology to help solve tricky problems within healthcare. At the same time, more and more start-ups and established tech companies are bringing out new, and at times innovative, digital tools aimed at health and wellbeing.
Content type: Long Read
Table of contentsIntroductionWeighing the (potential) benefits with the risksPrivacy rights and the right to healthThe right to healthPrivacy, data-protection and health dataThe right to health in the digital contextWhy the drive for digitalImproved access to healthcarePatient empowerment and remote monitoringBut these same digital solutions carry magnified risks…More (and more connected) dataData leaks and breachesData sharing without informed consentProfiling and manipulationTools are not…
Content type: Advocacy
Privacy International (PI) welcomes the opportunity to provide input to the forthcoming report the Special Rapporteur on contemporary forms of racism, racial discrimination, xenophobia and related tolerance to the 56th session of Human Rights Council which will examine and analyse the relationship between artificial intelligence (AI) and non-discrimination and racial equality, as well as other international human rights standards.AI applications are becoming a part of everyday life:…
Content type: Advocacy
Dejusticia, Fundación Karisma, and Privacy International submitted a joint stakeholder report on Colombia to the 44th session of the Universal Periodic Review at the UN Human Rights Council.Our submission raised concerns regarding the protection of the rights to freedom of expression and opinion, to privacy, and to personal data protection; the shutdown of civil society spaces; protection of the right to protest; and protection of the rights of the Venezuelan migrant and refugee population.…
Content type: Long Read
IntroductionData about our health reveals some of the most sensitive, intimate - and potentially embarrassing - information about who we are. Confidentiality is, and has always been, at the very heart of medical ethics. People need to be able to trust their doctors, nurses and other healthcare providers so that they are not afraid to tell them something important about their health for fear of shame, judgement or social exclusion.It’s no surprise then that data protection regimes around…
Content type: Long Read
Introduction
The 28th of September marks International Safe Abortion Day. It remains a day necessary to mobilise and raise awareness of the continued struggles women and girls face when accessing reproductive healthcare, including access to safe abortion. Across the world, abortion continues to be criminalised, restricted and in some places under attack. All of which constitute severe obstacles for women and girls to fully exercise their human rights, particularly their right to privacy, which…
Content type: Advocacy
Our submission focussed on the evolving impacts of (i) automated decision-making, (ii) the digitisation of social protection programmes, (iii) sensitive data-processing and (iv) assistive technologies in the experiences and rights of people with disabilities.We called on the OHCHR to:Examine the impact that growing digitisation and the use of new and emerging technologies across sectors has upon the rights of persons with disabilities;Urge states to ensure that the deployment of digital…
Content type: Advocacy
Privacy International (PI) notes the Bureau’s text of the WHO convention, agreement or other international instrument on pandemic prevention, preparedness and response (“WHO CA+”).
PI has sought to closely follow and engage with the discussions leading up to the draft treaty, despite the significant limitations to civil society participation in the process. In February 2023, we intervened during the briefing organised by the INB bureau and published our comments on the zero draft of the WHO CA…
Content type: News & Analysis
The relationship between privacy and access to abortion care
In 1973, in the state of Texas, it was a criminal offence to “procure or attempt” an abortion except if the purpose was “saving the life of the mother.” This law was enacted in 1854 by the Texas state legislature, and was part of a wave of provisions criminalising access to abortion care that was gaining ground across the U.S in the mid-1800s. It is worth highlighting that these laws were being passed at a time when women in the U.S…
Content type: Long Read
In the wake of the recent news of the US Supreme Court’s decision to overturn the ruling of Roe v Wade in its ruling in Dobbs v Jackson Women's Health Organization, headlines have been dominated by conversations around privacy and fears of how the criminalisation of abortion care and surveillance by law enforcement will play out in a tech driven world.
This discussion is increasingly important as governments move towards digitising their healthcare systems and as more individuals choose to…
Content type: Advocacy
In line with WHO's commitment to a human rights-based approach to health, Privacy International believes the following elements procedural and substantive elements must be included:
Open, inclusive and multi-stakeholder process
The drafting and negotiation process of this international instrument must allow for the meaningful participation of a wide range of civil society organisations (CSOs) and reflect the commitment from the WHO and Member States to receive and respond to CSOs…
Content type: Long Read
This piece is a part of a collection of research that demonstrates how data-intensive systems that are built to deliver reproductive and maternal healthcare are not adequately prioritising equality and privacy.
What are they?
Short Message Services (SMS) are being used in mobile health (MHealth) initiatives which aim to deliver crucial information to expecting and new mothers. These initiatives are being implemented in developing countries experiencing a large percentage of maternal and…
Content type: Long Read
For over 20 years with the start of the first use of ICTs in the 1990s, we have seen a digital revolution in the health sector. The Covid-19 pandemic significantly accelerated the digitalisation of the health sector, and it illustrates how fast this uptake can be and what opportunities can emerge; but also, importantly, the risks that it involves.
As we've said many times before, whilst technologies can be part of the solution to tackle some socio-economic and political challenges facing our…
Content type: Long Read
Image found here.
Founded in 1959, Bounty UK Limited markets itself as an information service for pregnant women and new mothers. Prior to the pandemic, it was best known for distributing “Bounty packs” of free samples of baby products to pregnant women at midwife appointments, to new mothers on maternity wards in the UK and through its digital presence via its website and app. Bounty representatives also sold new born photography packages to new mothers at the hospital bedside. Bounty entered…
Content type: Advocacy
On 6 August 2021, the World Health Organisation (WHO) published its technical specifications and implementation guidance for “Digital Documentation of COVID-19 Certificates: Vaccination Status” (DDCC:VS) following months of consultations. As governments around the world are deploying their own Covid-19 certificates, guidance from the global health agency was expected to set a global approach, and one that prioritises public health. As such, we would expect the WHO to identify what these…
Content type: News & Analysis
Last month, the World Health Organization published its guidance on Ethics and Governance of Artificial Intelligence for Health. Privacy International was one of the organisations that was tasked with reviewing the report. We want to start by acknowledging that this report is a very thorough one that does not shy away from acknowledging the risks and limitations of the use of AI in healthcare. As it is often the case with guidance notes of this kind, its effectiveness will depend on the…
Content type: News & Analysis
Today, the European Commission has concluded its Phase II in-depth review of the proposed acquisition of the health and fitness tracker Fitbit by Google, deciding that the merger can go through. While we welcome the commitments put forward by Google to mitigate some risks of compromising individuals' rights and competition, PI considers the effects of this merger will further strengthen Google's capacity to exploit our data.
On 15 June 2020, Google formally notified the European Commission of…
Content type: Long Read
An edited version of this article was originally published on the EDRi website in September 2020.
Introduction
Monopolies, mergers and acquisitions, anti-trust laws. These may seem like tangential or irrelevant issues for privacy and digital rights organisations. But having run our first public petition opposing a big tech merger, we wanted to set out why we think this is an important frontier for people's rights across Europe and indeed across the world.
In June, Google notified the…
Content type: Explainer
At first glance, infrared temperature checks would appear to provide much-needed reassurance for people concerned about their own health, as well as that of loved ones and colleagues, as the lockdown is lifted. More people are beginning to travel, and are re-entering offices, airports, and other contained public and private spaces. Thermal imaging cameras are presented as an effective way to detect if someone has one of the symptoms of the coronavirus - a temperature.
However, there is little…
Content type: Explainer
Definition
An immunity passport (also known as a 'risk-free certificate' or 'immunity certificate') is a credential given to a person who is assumed to be immune from COVID-19 and so protected against re-infection. This 'passport' would give them rights and privileges that other members of the community do not have such as to work or travel.
For Covid-19 this requires a process through which people are reliably tested for immunity and there is a secure process of issuing a document or other…
Content type: Press release
On 15 June 2020, Google formally notified the European Commission of its proposed acquisition of Fitbit, enabling them to capture a massive trove of sensitive health data that will expand and entrench its digital dominance. Privacy International is calling on EU regulators to block the merger.
In November 2019, Google announced its plan to acquire Fitbit, a company that produces and sells health tracking technologies and wearables - including smartwatches, health trackers and smart scales -…
Content type: News & Analysis
This week, we read that a former Apple contractor who blew the whistle on the company’s programme to listen to users’ Siri recordings has decided to go public, in protest at the lack of action taken as a result of the July 2019 disclosures. The news adds to a series of revelations that have been reported over the past months.
While the issue raises serious questions regarding the compatibility of such practices with data protection laws, at the same time, it highlights a wider problem that…
Content type: Long Read
This week saw the release of a coronavirus tracking app within the United Kingdom, initially to be trialled in the Isle of Wight. Privacy International has been following this closely, along with other ‘track and trace’ apps like those seen in over 30 other countries.
The UK’s app is no different. It is a small part of a public health response to this pandemic. As with all the other apps, it is vital that it be integrated with a comprehensive healthcare response, prioritise people, and…
Content type: Long Read
UPDATE 21/07/2020: On Monday July 20th, the Israeli parliament approved a new bill allowing the Ministry of Health to rely again on the Intelligence Services to track people who may have been exposed to Covid 19 when the number of new cases reaches 200 and above per day. The authorisation is then granted for three weeks and can be extended if the numbers have not decreased. The new law will be effective until January 2021. As of July 21st and for at least the next three weeks, the Intelligence…
Content type: News & Analysis
This week International Health Day was marked amidst a global pandemic which has impacted every region in the world. And it gives us a chance to reflect on how tech companies, governments, and international agencies are responding to Covid-19 through the use of data and tech.
All of them have been announcing measures to help contain or respond to the spread of the virus; but too many allow for unprecedented levels of data exploitation with unclear benefits, and raising so many red flags…
Content type: Examples
The World Health Organization will partner with major blockchain and technology companies to launch a distributed ledger-based platform to be dubbed "MiPasa" that it says will facilitate "fully private information sharing between individuals, state authorities, and health institutions" by cross-referencing siloed location and health data to create global insights. The WHO believes the system can ensure patient privacy. MiPasa also expects to host an array of publicly accessible analytics tools…
Content type: Long Read
This piece was written by Aayush Rathi and Ambika Tandon, who are policy officers at the Centre for Internet and Society (CIS) in India. The piece was originally published on the website Economic Policy Weekly India here.
In order to bring out certain conceptual and procedural problems with health monitoring in the Indian context, this article posits health monitoring as surveillance and not merely as a “data problem.” Casting a critical feminist lens, the historicity of surveillance practices…
Content type: Long Read
Following a series of FOI requests from Privacy International and other organisations, the Department of Health and Social Care has now released its contract with Amazon, regarding the use of NHS content by Alexa, Amazon’s virtual assistant. The content of the contract is to a big extent redacted, and we contest the Department of Health’s take on the notion of public interest.
Remember when in July this year the UK government announced a partnership with Amazon so that people would now…
Content type: Long Read
A new study by Privacy International reveals how popular websites about depression in France, Germany and the UK share user data with advertisers, data brokers and large tech companies, while some depression test websites leak answers and test results with third parties. The findings raise serious concerns about compliance with European data protection and privacy laws.
This article is part of a research led by Privacy International on mental health websites and tracking. Read our…
Content type: Long Read
Photo by David Werbrouck on Unsplash
This is an ongoing series about the ways in which those searching for abortion information and procedures are being traced and tracked online. This work is part of a broader programme of work aimed at safeguarding the dignity of people by challenging current power dynamics, and redefining our relationship with governments, companies, and within our own communities. As an enabling right, privacy plays an important role in supporting the exercise of…